my pump gear

eat. pray. bolus.

2011-04-01T07:00:00.000-07:00

If you'd like to follow our next blogging adventure, make your way over to eat. pray. bolus. See you there!

Going...out...of...business...

2011-02-16T08:00:00.000-08:00

It is after much thought, discussion, tears and prayers that I write. My Pump Gear is officially going out of business.

***Take a look at the website*** to see the LOW, LOW prices on the limited stock of products. Most packs are only $10! Toy packs are just $1!! We are trying to clear out as many items as we can. This is a great opportunity to grab some at cheap cheap prices. You won't find anything on any other website this low. We will only be up and running for a couple more weeks. (http://www.mypumpgear.com)
________________

My Pump Gear was a dream. I literally woke up one morning back in 2006, and envisioned the whole thing. I wanted to bring affordable insulin pump accessories to kids (& kids at heart!) I wanted to make a difference in the lives of kids with diabetes.

It had become increasingly frustrating to search cyberspace for ways in which our (then) toddler daughter could wear this device called an insulin pump. I mean, potty-training was a nightmare. Several near misses with the pump diving for the toilet made it an absolute necessity that we find something. And, we did. But as I remember, just one pump case was priced near $40! It was cute. It did the job. But $40? Really? And, our daughter would need more than one. A girl needs to accessorize, you know!

And so, our journey began.

In between drop-offs and pick-ups for the boys, C and I made the rounds...to fabric warehouses, different manufacturers, the L.A. fabric district. By sheer, divine intervention, I was directed to the self-described "bag lady." She became not only my prototype developer, she became a mentor. I remember that first meeting. I was so nervous going to this stranger's house, not knowing what to expect. I went with a checkbook in one hand and my little pre-schooler in the other. I was at this lady's mercy. I was prepared to pay whatever she charged for a consult.

When I walked out of that meeting, I felt so positive and free of the nerves that accompanied me inside. She had spent 2 1/2 hours with me and C, learning about diabetes and what our product need truly was. When we were about to leave, I opened up the checkbook and asked,

"How much do I owe you?"

"Nothing."

"Nothing?"

And with a smile, she said, "I never charge just to talk."

You see what I mean! Divine intervention.

That was the beginning. 4+ years ago. We have met so many wonderful people through this business experience. And, sure, there have been a couple people who ripped me off royally. But for the most part, the people we've had dealings with, have been kind and helpful.

By education, I am an elementary school teacher. So the language of business was quite foreign to me. I have learned so much. And, though I was scared of answering the phone for fear of a disgruntled customer, most times I was pleasantly surprised. I found that some people really just needed to talk about all the new diabetes stuff in their lives. I've felt sincerely honored to have been that listening ear or have given a small tip regarding the management of insulin pumps on tiny, little bodies.

We may be closing up shop soon but we're not leaving cyberspace completely. Our blog will soon take on a different shape as we move from business to our continuing endeavors for diabetes advocacy. So, come back and visit us soon!

Thank you for allowing us into your lives! It is true, ours are fuller and richer because of My Pump Gear.

A Look Back...My Two Sons.

2010-11-29T08:18:00.000-08:00

So I'm a day late and several dollars short...who cares, right? Yesterday was declared Special Sib of a D-Kid Day by some special D moms out there: Alexis of Justice's Misbehaving Pancreas and Sherry of Jenna's Pet Monkey. It's a day to direct the attention to the kids who help out with all the diabetes stuff. Their lives are affected by this disease too. Thanks Alexis and Sherry!

I'm pulling an old post up from about 1 1/2 years ago. I thought it fit the theme perfectly. They may be a bit older now, but they are definitely still Special Sibs of our D-Kid!...my two sons.

_____________________________________

Remember the old television show, My Three Sons? Well, this is the newest edition of "My Two Sons!" (Disclaimer: this goes against everything my mother ever taught me regarding boasting/bragging. Sorry, mom.) I thought it appropriate to write about my two boys for several reasons.

First of all, they're my boys and I love 'em! They have both played long and hard on their separate baseball all-star teams this summer. And as baseball sometimes goes, they both had games last night. Both their teams lost last night, which means...they are both finished with baseball. Well, at least for a while!

They are a funny pair.

Big C has brilliant red hair, stands nearly taller than I do and can pitch an insanely fast ball. He's 12. It seemed we had to re-iterate that fact several times to people during Little League this year because he stands taller than any other kid at his level. He will be going into the 7th grade this fall. He always gives us many reasons to be proud.

Then there's Middle C. His hair is also red, but more of a subtler shade. He is reminiscent of Opie Taylor -- Ron Howard's character on The Andy Griffith Show. Grandma tells him he looks like a young Brad Pitt. Either way, yes, I think he is handsome! He'll be headed for 5th grade this fall. And, I've got to say, the humor inside this kid keeps us laughing every day!

The second reason I wanted to write about them on the blog is regarding the roles they play in our family where diabetes is concerned. Their lives, too, are affected by this disease. A lot of time and attention is given to C because of type 1. And, though it is an intricate part of our family, we strive daily to carry on our normal routines. We never want diabetes to rule whether we do activities or not. But there are times, when it rears it's ugly head at inopportune moments. My boys have seriously never once grumbled about the "diabetes-interrupted" times. A low may need to be treated when heading out the door. Or, maybe the low happens at the end of a baseball game when the team is heading to the local pizza parlor. And, we just need to sit and be patient while C struggles to feel better. Diabetes is demanding. And it's demanding on all of us, including my two sons.

They support our efforts in raising awareness and raising funds for the JDRF. They participate in walks. They've attended Family Camp Days to learn more about diabetes. They were so excited this past May, when we set up a Sno Cone sale at the baseball fields. All proceeds will be going to our walk team. At one point during the day, they took over running the booth with some of their baseball buddies!

Big C recently wrote a paper all about type 1 diabetes and how his sister deals with it all. I was so touched...I posted it back in May. It shows how much he knows about this disease, more so than many people. It also shows that he doesn't take it lightly.

The last reason I wanted to write about my two sons in this post is to highlight one other thing they do in the fight against diabetes. They both participate in TrialNet. It's the ongoing trial to find answers from lab work gathered by siblings and cousins of type 1 kids. And, although they aren't jumping up and down with excitement to get their blood drawn yearly, they do it because it's what they can do to make a difference. I'm proud of them for that!

My two sons...

eat. pray. bolus.

2010-11-18T08:00:00.000-08:00

It's been a little over a week since our JDRF Walk. I wish that time would just slow down a bit. Really. There is so much going on all around us...I wish we could absorb more of it. Anyway, let's get back to the walk, shall we?...
_____________________________________

On Sunday, November 7th, C headed up her first walk team ever! For the past however-many-years, we have joined a couple different teams. But this year, C made it clear that she was ready to take on the task of forming her own team and putting in the effort to raise funds. So, how could we say "no" to that??

And, so, C's Pack formed. Family joined. Friends joined. Friends of friends joined. Relatives of friends joined. All-in-all, her team ended up being over 60 people strong! Donations started rolling in from distant relatives and from some we've only met online! It truly amazed us! Her team efforts resulted in donations totaling over $2,600.

What touched us even more than the financial generosity was the participation...the actual walkers who showed up to support her and the others we know that deal with diabetes every single day. To say the least, it sparked a fire in her, I believe! What encouragement she (we) felt to see her little friends walking up and down the hills of Dodger Stadium...

It was a terrific day. And, maybe even a little education was given to bring more awareness to the disease. We handed out a paper with lots of myth-busting information regarding diabetes. We just felt that the turn-out for C's Pack was so tremendous, we wanted everyone to go home with a better sense of why we were going to such effort to raise money.

Here's a look back on the day...a terrific one!

60 + strong!


Self-explanatory.

Heading up her own team.

Friends made it special!

eat. pray. bolus. Our shirts were a hit!

Supportive friends.

Every time we're there, I think I'll take a picture of this...World Diabetes Day, you know!

If you'd like to see the entire photo album, come join us on our Facebook page!

6 Little Ducks.

2010-11-09T08:00:00.000-08:00

It's D-Blog Day!!

However, blogging has been no where close to consistent lately. And, so I'm arriving a bit late to the party today. But how could I let a post slip today, of all days?!
Our very own Diabetes BFF, Gina, from over there at Diabetes Talkfest, first initiated D-Blog Day in 2005. It is taking the DOC by storm today! The topic this year is: 6 things you want people to know about diabetes.

Well, I even asked Gina, "Only 6 things?" Because, really, I could list tons more. But, I am a rule-follower, so I will obey!

We recently made a list of diabetes awareness facts that we handed out at last Sunday's JDRF walk. We were so pleasantly surprised at the incredible support given to our little C and her team efforts! We felt it was important to take that awesome moment and educate, if just a bit, to our family and friends who came out to show their support and love and raise funds for diabetes research. We handed out our list of things we want people to know about diabetes to them. But, believe me, there were way more than 6 on that paper! I've struggled to narrow things down a bit.

6 Things We Want People to Know About Diabetes

The warning signs: extreme thirst, frequent urination, fatigue, weight loss, fruity smelling and shortness of breath, blurry vision and more. Know these and tell others. It could save a life!
No one gets diabetes from eating too much sugar. Sugar can actually save a diabetic's life.
There are theories, but not even the experts know why a person get type 1 diabetes. There's nothing that was eaten, done or said that gave them this disease...and, it's not contagious.
However wonderful insulin is (and it is!), it is not a cure. It is life support.
Kids with type 1 diabetes grow up to be adults with type 1 diabetes. They will not grow out of it.
Diabetes is 24/7...every minute of every day. It is a constant balancing act between blood sugar checks, carbohydrates, insulin, exercise, stress, hormones, etc. There is no break or vacation from it...until there's a cure.

Oh...there's so much more!...But, I'm not gonna do it...nope, not gonna. Here's how I'll remedy my restlessness with this issue: click here if you are curious about all the other things we want the world to know!

(Oh...and the duck thing? Every time I began thinking about this post, the song "Six Little Ducks" popped into my head.)

The Big Blue Test

2010-11-03T15:16:00.000-07:00

The Big Blue Test is almost here! On November 14th, at 2:00 pm (local time).Click here to find out more about the Big Blue Test and the Diabetes Hands Foundation.

Here's something you can do right now to, not only help spread awareness, but to give life-saving insulin to children in need. Just watch the following video. That's it. Simple, right?! It will take a mere minute and 49 seconds of your time but will give a child with diabetes a week supply of insulin!

Then, spread the word by telling your friends and family to do the same. Post it on facebook. Tweet about it on twitter. Email the link to everyone you know. Let's see how many views we can help make happen between now and November 14th...

What Did You SAE?

2010-11-01T09:31:00.001-07:00

November 1st. It's just the beginning of Diabetes Awareness Month! Around here, we're going to lay out some facts and SAE It Loud! (Thanks Sarah, aka: Sugabetic, for rallying the troops!)

The idea here, is to SUPPORT, ADVOCATE, and EDUCATE about diabetes...to bring to light the facts on this, too often, misunderstood disease.

There are so many great things happening this month! Here are just a few:

SAE It Loud day...cruise around the blogosphere and give some comment love to fellow D-bloggers. Here's a list of participating blogs from Sarah...
JDRF Walk at Dodgers Stadium on Sunday, November 7th. C is captain of her first team and we're excited!
November 9th is D-Blog Day. Topic: what 6 things do you want people to know about diabetes? Check in with your diabetes' BFF, Gina to learn more!
November 14th is World Diabetes Day...yes, world! This is the day to drench ourselves in blue and "bring diabetes to light" around the globe.
The Big Blue Test will be happening on November 14th as part of World Diabetes Day.
and so many more things that will unfold this month!

The underlying hope, running through all these events?...a cure.

However, in between, and long after November, life with diabetes will continue. Every day. Counting carbs before every meal. Finger sticking multiple times a day. The monstrous fear of complications. I guess it's our motivation then, to raise awareness...and SAE It Loud!

Baseball Dreams...

2010-10-07T08:00:00.000-07:00

Click here to view list of blogs participating in No D Day.

...Cooperstown Dreams Park, New York...

The highlight of my son's life so far: traveling to Cooperstown, New York with his baseball team this summer.

The anticipation of this trip reached its peak toward the middle of August. Fund raising was over. New equipment was bought. His hard work was about to pay off!

There were fund raisers all year...you know, selling things, having raffles, and finding local companies for sponsorship. But above and beyond all these efforts, Big C put in some old-fashioned blood and sweat. He mowed lawns, watered plants and even gave up some of his weekly allowance, in order to go on this trip of a lifetime. I really was so proud of him.

The only bit of disappointment was in the fact that this would not be a vacation for the entire family. But it would be an extraordinary memory-maker for him and Dad.

We got him all packed up...baseball equipment and all.

We had really stressed to him that the trip was expensive. And that he would have to do his part and work hard. The money he had earned for the last many months was put away...for just that purpose. So, you can imagine his surprise when we handed all his hard-earned dollars back to him on the week before the trip...to be his spending money.

In the middle of August, they took off to New York. It was a long week back at home for us. We missed them terribly. But we got to talk nearly every night. Team families would text some highlights (like Big C's 2 home runs!) And, we even got to watch one of the games live, online.

When the day came to pick up Dad and Big C, we headed to LAX, ready to hear all about their week. Well, this kid talked and talked and talked and talked some more! It was so obvious that it had been a dream-come-true for him...

Here are some highlights from that experience:

bunking with the team + 4 coaches (Dad included)
going to the Baseball Hall of Fame
eating their fill and then some, at meal time
BBQ'ing and relaxing at team families' condos
trading pins with a thousand other boys
buying souvenirs
walking around a totally baseball-themed town
being given a special ring for the tournament
ranking 18th out of 100 teams
hitting a home run
hitting a 2nd home run
visiting Doubleday Field, home of baseball
simply traveling across the country to play baseball
spending 1 last exciting week with teammates he's played with for the past 3 years

And that, my friends, are what baseball dreams are made of...

A Walk to Remember.

2010-10-04T08:00:00.000-07:00

Saturday.

We walked. We met friends. We smiled and laughed. We ate. We listened. We celebrated. We also sweated a whole lot!! (Southern California had immense humidity last week!)

We walked in the Ontario, California JDRF walk to cure diabetes for the 5th year with team Kids That Care. Our faithful teachers came out to support the team once again. The team is headed up by our friend, K, who does so much for the cause. She was also recently appointed junior board member for the Inland Empire chapter. We're proud of her and proud to walk on her team!


K's mom, K and C


Kids That Care

We met friends...some, for the first time. You couldn't miss them! They were the largest team out there...all in black...ready to battle diabetes...Team Ninjabetic!

George had put the word out to the DOC (diabetes online community) to join the team, raise money, and celebrate...20 years to the day of his type 1 diagnosis. He put the invite out there. And, they came. Boy, did they ever! I'm not certain of the final count, but probably 12-15 of George's fellow PWDs either drove or flew cross country to walk on his team. His team totaled over 60 people in all.

Look who we found! The Ninjabetic & Mr. Scott Johnson

Cheering Team Ninjabetic!

After the walk, we headed over to George's celebration. I don't think I'm going to do this thing justice in writing about it. I was quite overwhelmed. What support and love was in that room! We ate and talked and made real life connections with people.

Near the end of the party, George had prepared a presentation of sorts. Really it was his story...with diabetes. It was a glimpse deeper into his life. A new D mom friend and I talked as we both observed all that was going on around us. "These people are inspirational to me," she said. Yes. Do these people even realize how they inspire us parents of type 1s? They welcome us into their circle and let us see that our kids can have wonderful, full lives. And as Sara told me: "and that we grow up and do just fine and have fun!"

What a celebration!

So of course, George, being the ninja that he is, included all PWDs there that day. He invited them to stand and introduce themselves along with the number of years each has lived with diabetes...little C included. He sang his song, Not By Choice. I had intended on taking more pictures. But I was quite lost in the moment. I sat there with husband and new D mom-friend and C next to me. Thankfully, it was recorded. You can click here to watch and listen, courtesy of Sara.

George sang his song, Not By Choice.

D Mom Emily, me & Mr. Scott Johnson

Thanks George, for including us in your celebration!

Walkin'

2010-10-01T08:00:00.000-07:00

Tomorrow is the 1st of 2 JDRF walks we will be participating in this fall. We have walked in this one for the past 5 years. Always, we have bee welcomed warmly onto the Kids That Care team, headed up by our friend K. They were the first type 1 family we met, way back when...

This particular walk is super fun and family-oriented. Kids are even encouraged to bring their dogs...which reminds me of the year we went to the walk with 1 dog and came home with 2. (Don't ask.)

However, this year's walk has an extra special twist. We will meet and walk with the Kids That Care team, as usual. The special treat will come after the walk is over.

A friend from the DOC (Diabetes Online Community) will be there, walking with quite the awesome "Team Ninjabetic." We've been invited, along with many other DOC'ers, to a wonderful celebration afterwards. You see, George, the Ninjabetic, is celebrating his 20th diaversary...that's 20 years of living with diabetes. Celebrating, you ask? Yes! Here is a clear example of looking through positive glasses at a life with diabetes. There is so much to celebrate! This is what helps us stay encouraged and strong in our fight against diabetes...people like George.

In addition to meeting the Ninjabetic in person, we will also have the opportunity to "meet" many other DOC'ers. I'm looking forward to being among so many others who understand our situation with diabetes, completely. On a day-to-day basis, C stands very alone with this disease. Not tomorrow. It should be an awesome time!

I wonder if there will be bacon?

Let Them Eat Cake!

2010-09-29T08:00:00.000-07:00

I was at the public library with C the other day. As she was browsing for her selections, I found myself thumbing through books on diseases, written with children in mind. Of course, my eyes shot to the few on diabetes and I grabbed one. The cover was cute and it was written for very young children, maybe K-2 grades. The illustrations were sweet. I flipped through the pages. It had all the same shocking turns that our own experience held: illness, hospitalization, diagnosis, insulin injections, finger pokes, nutrition, emotions. However, one of the last pictures made me pause.

It showed a birthday party scene. Happy children gathered around a table. Party hats and streamers. Each child was enjoying a thick slice of birthday cake, except one little girl. On her plate was an apple. An apple?!! Her face was so sad. The couple of sentences underneath this picture eluded to the fact that because this child has diabetes, she no longer was allowed treats. What?!!!

Now, I'm a big fan of apples, really. But I 'm a bigger fan of allowing my type 1 kid to be a kid, to not make her stick out of a crowd like...like...well, like an apple at a birthday party!

I quickly flipped the pages back to the beginning. When was this book written? 1991. Okay, that is quite a ways back. But still I question: Why in the world was this still on a book shelf? I mean, seriously, that gave me the feeling of a pit in the bottom of my stomach.

I glanced over at C. Do I show her the few little books I found on diabetes? Do I show her this one? I thought to myself, We could talk about how she's on a pump --how we calculate carbs for treats -- how she can certainly have birthday cake. But I stopped. She was happily busy looking for a book on Pandas. Not today, I thought. We don't need to talk diabetes today...not right now.

I slipped the book back in its place. As we checked out our stack of books, I kept wondering, Do people really believe that still? I know the myth is alive and kicking in non D circles. But do parents of type 1s still think this way?

Birthday cake. It's a challenge, for sure. As are a lot of other delicious, carb-exploding foods. But challenge or not, everyone deserves a piece of cake now and then. Hopefully, our library just has an old publication. Hopefully, that book has been updated. An apple instead of birthday cake? I don't think so.

Mexican Caesar Salad

2010-09-24T08:00:00.000-07:00

This is a family favorite! Middle C continually asks for it. Yes, salad!

Romaine lettuce, chopped
pepitas (roasted/salted pumpkin seeds)
shredded parmesan or romano cheese
crushed tortilla chips

Dressing:

3 T. pepitas
3 T Parmesan/Romano cheese
3 T red wine vinegar
3/4 cup vegetable oil
1/2 t salt
1/8 pepper
1 bunch cilantro

Combine all dressing ingredients (except cilantro) in blender. Blend until smooth. Add cilantro, a little at a time, until well combined. This is a lot of dressing and can be stored in the refrigerator for a couple days.

That is it...fresh and delicious and no preservatives or chemicals! A perfect salad to accompany Chicken Tortilla, Chicken Tortilla, Chicken Tortilla Soup!

Sometimes I add chicken, black beans, corn and tomatoes to make the salad a complete meal in itself.

Five Oh Four...or...Diabetes & the Annoying Orange

2010-09-22T08:00:00.000-07:00

We had our meeting...the 504 plan meeting, that is. All went well.

I am so glad that we started having a plan right from the beginning of kindergarten. I was apprehensive about it back then. I remember asking the only other family with type 1 at our school regarding their daughter's plan. She was considerably older than C. They had never done one. The Health Aide said there was no need for one. The nurse agreed. But something told me, though these people had C's best interest at heart...and, they are lovely people...I needed to protect my little type 1 kid's rights, in writing.

Each year, the plan is tweaked just a bit, to accommodate a growing kid. As I think back over the last 3 years, I am pretty amazed at how C has grown in her self-management of this disease! Don't get me wrong. She will always be able to count on me to be a part of it all. I read plenty of grown-up diabetes blogs to know she will continually need a strong support system even when she's an adult. I am just in wonder sometimes, when she demonstrates a deeper understanding of this crazy thing called diabetes!

So...back to the five oh four...

Really, the only changes this year included the point that one of her parents or designated caregiver must be allowed to ride with her on the bus, for field trips. There had been a couple instances last year that made me feel that it had better be stated in our plan. The comments and stares from other parents don't really bother me (kind of). But when her teacher tells me on each field trip day that I'll be allowed to ride on the bus "if there's room," I figured we should include this little stipulation.

Another small change was the simple added statement: C will work toward testing and treating out-of-range blood glucose in the classroom. By 4th and 5th grade, I don't want her to miss any instructional time, unnecessarily. I really just wanted to mention it to the nurse and principal so they have an idea that the time is coming.

During last year's meeting, I seriously wanted the 2nd grade team of teachers to all handle the glucagon kit and be educated about when and how to use it. It was quite a hurdle for me. Maybe this year's teacher expected it. He had no qualms about it. He went for it! It almost seemed like he couldn't wait to give that orange an injection! Maybe he had heard about this mom who insisted on teaching the staff about how to inject glucagon into her daughter using an orange. Who knows?

I ended up sharing about the meeting later that night with the family. Big C chimed in..."Wouldn't that make a great Annoying Orange episode?!"...

"Diabetes & the Annoying Orange"

You say you've never heard of The Annoying Orange?? You're missing out...or...maybe you don't live with a 13 year old!

Chicken Tortilla, Chicken Tortilla, Chicken Tortilla Soup!

2010-09-09T08:00:00.000-07:00

It's D-Feast Friday time!

I admit that some days are just too packed with after school activities. Yesterday was one of those days.

After working all morning on the computer, my dried-up, blurry eyes couldn't take it anymore. So, I closed up shop and moved on to the laundry...oh joy. And in between loads I began preparing, what I call, "real" chicken! Not from a can (I'm guilty of using canned chicken at times...) and not pre-cooked, pre-packaged. 6 honest-to-goodness breasts of raw chicken, bone-in and everything. I was feeling almost victorious over the day already. The chicken was roasting and I gathered the other ingredients for...chicken tortilla soup.

Now, we live in Southern California. So the first inkling of cool weather is cause for celebration and the return of wonderful, stress-free, crock pot cooking! It's been cold and cloudy the past few days (okay, low 70s is cold for us!) The family started suggesting a bunch of our favorites. Chicken tortilla soup seemed to dominate the conversation the night before. So...soup was on!

It's soooo simple and soooo delicious. It's low-fat and filling. It's great as a leftover the next couple days too! The whole family has learned to love it as much as I do. My mantra holds true and this recipe is proof: "Serve it, and they will eat it." (Now, it may take a dozen times, but they WILL learn to love it!)

And, although our afternoon turned crazy with all our activities...in fact, we didn't get home until 6:45 pm...at least dinner was ready and waiting for us. On the way home, everybody asked, "What's for dinner?"

"Chicken tortilla soup," I said.

And the chanting began: "Chicken tortilla, chicken tortilla, chicken tortilla soup!...Chicken tortilla, chicken tortilla, chicken tortilla soup!"

Yes. They love it!

Chicken Tortilla Soup

1 large jar of chunky salsa
1 can black beans, drained/rinsed
1 can corn, drained/rinsed
32 oz. chicken broth
32 oz. water
2-3 large chicken breasts, cooked/chopped

Dump all ingredients into crock pot. Cook on high for 3-4 hours or on low for longer. We like to place tortilla chips on the bottom of the bowl, scoop over the soup and top with grated cheese. It's so yummy.

Now, I'm sure you could use different ingredients. Experiment...and enjoy!

(As for the carb count...we count the chips for C and that's it! She doesn't get much of the corn or beans in a small bowl.)

School Supplies.

2010-09-07T08:00:00.000-07:00

Every year, we receive a packet from the school, giving a suggested supply list for each grade level. I don't remember going shopping for all these things when I was young. "Back-to-school shopping" was simply for clothes and shoes. Maybe there's a conspiracy between the retail stores and the education department! Or maybe it's just a a sign of the times. (I mean, these poor teachers don't even have a budget for a box of tissues!) But, whatever it is, it certainly is exciting for the kids! So, off to Target, we went...

Here's the suggested list for 3rd grade:

box of 10 washable markers
box of colored pencils
box of #2 pencils
pack of 3 pink Pearl erasers
box of 16 or 24 crayons
pack of 3 glue sticks
pack of 3 highlighters
dry erase markers
pencil sharpener w/shavings catcher
pack of 3 x 5 cards
usb drive
small pencil/supply case
pair of child scissors
lined spiral notebook
2 reams of white copy paper
wide-ruled notebook paper
boxes of tissues
hand sanitizer
disinfectant wipes

And, although the above items are important...I paid more attention to the following supply list while back-to-school shopping:

2 boxes (Health Office and classroom)
extra meters
lancets
test strips
glucose tablets
juice boxes
extra carb-y snacks(cheese/peanut butter crackers, granola bars, etc.)
extra site change supplies (quick-serter, reservoirs, infusion sets)
insulin (kept in H. O. fridge)
glucagon kits
emergency directions/picture
emergency syringes
extra AAA batteries

The most important school supplies.

Presenting Diabetes to 3rd Graders...

2010-09-03T08:00:00.000-07:00

When C was in kindergarten, she helped me create a picture book that taught the class about diabetes. We shared it with the class in the beginning of the year. We used it for 1st grade and 2nd grad too. It was really adorable, if I do say so myself. And the kids really got into it. Each year, I would go into the classroom and C would demonstrate a blood sugar check and talk about what life is like with diabetes.

Well, this year, I asked her if she wanted to do that again. She did want to but thought that our little book is too "baby-ish" for 3rd grade. "I'll just tell them about it, Mom!"

So, I helped her type up her words in a short explanation. She wanted to present it herself, no help from me.

"Can I at least come in and listen?" I asked.

"Okay," she smiled.

I'm so very thankful that she has such a courageous spirit. I would not have wanted to do anything of the sort when I was her age. The following is what she presented. (And, of course, she shared her bear and supply box!)

Hi! I’m C and I have type 1 diabetes. I was diagnosed before I was even 2 years old. I got very sick and had to be in the hospital.

Diabetes means that I have a disease. My pancreas doesn’t work well. For you, your pancreas is the organ in your body that makes insulin. Mine, doesn’t. So, I have something called a pump that gives me the insulin I need. When we eat food, we need insulin to help our bodies use the energy from food.

I have to poke my finger to check my blood sugar before I eat food and when I don’t feel well. This number is important and gets put into my pump. My pump is NOT a toy. It’s like a little computer. I tell it how much food I’m going to eat and then it figures out how much insulin I need. My pump helps keep me healthy.

You may see me check my blood sugar in the classroom. It might be because I “feel low.” My number might be too low. This can make me feel sick. To help get my number back up, I need to drink a juice box or some tablets, something that has a lot of sugar. Then my body will feel better.

Most of the time, I will just go to the Health Office to do my checks. I’ll need some good friends to walk with me. It will be great this year to be able to count on all of you to help me. I hope I can help you with something someday too!

The important thing I want to tell you today is that even though I have type 1 diabetes, and even though I need to check my blood sugar, I’m really a lot like you. I am on a soccer team. I like to ride my bike and play with my friends. I just need to take care of my diabetes too.

Diabetes Art Day

2010-09-01T08:00:00.000-07:00

September 1, 2010...Happy Diabetes Art Day! I just can't wait to browse around the blogosphere today and enjoy the creativity! Did you get artsy?? Hey, it's not too late...

Below is a picture created by C. I told her to "draw whatever comes to mind when you think about diabetes."

"Pinky in the Meadow"

I just can't help myself...I must comment on this picture!

This is an 8 year old's point of view on diabetes. "Pinky" is C's pump. Look how happy he is! He's taking C's meter for a walk. I love this!

My own interpretation: The insulin pump is taming her blood glucose numbers! Notice "99," the dog?...he's the meter!

Are You Artsy???

2010-08-30T08:00:00.000-07:00

Well, even if you're not, I hope you'll join in on Wednesday, September 1, 2010 for Diabetes Art Day. Lee Ann, over at The Butter Compartment, has initiated this project. I am really looking forward to seeing all the art posted on blogs, Twitter, Facebook, TuDiabetes...wherever!

courtesy of http://www.thebuttercompartment.com

This is another opportunity to spread awareness. Please go to Lee Ann's blog and read all about it. You don't need to be a Picasso or Van Gogh to participate. I know C has something up her little 8 year old sleeve. And I'm going to try and coax creativity out of her brothers as well!

If you write your own blog, you can post an image of your diabetes art right there! If you don't have a site, don't worry...Lee Ann gives us several ideas of where and how to post our pictures. She'll even do it for you if you email your stuff to her!

So, go gather your crayons, finger paints and old diabetes supplies, and let the creative animal free!!

See you back here on Wednesday!

Back to 3rd Grade

2010-08-27T12:14:00.000-07:00

So, the kids went back to school this week. All things considered, it was a smooth transition. We officially have a 3rd grader at one school and the 2 boys are at the middle school (6th and 8th grades). I know that kids all over the world grow up to the next grade each year. But I find this truly remarkable...right here, under my own nose!

This has been such a reflective summer for me. It started off in June, when I celebrated my 5 year mark...5 years since my cancer diagnosis. And even though I thought this time would pass...that I would be able to fold up the last 5 years, neatly, and put them up on a shelf...it's the strangest thing. I haven't been able to do that. I'm reminded of it every day.

I was reminded of it on Monday, as I walked onto campus with C. There we walked, hand in hand, to the classroom where 5 years previously I had walked Big C to 3rd grade. (Well, different room, but same teacher!) I remember shaking the young, first-year teacher's hand. I remember explaining to him about my cancer, as I peered from underneath one of my many hats. I remember his eyes, big and round as saucers. "If you could just keep an eye on Big C," I said. "It's been a tough time on him too."

I remember.

I remember being so thrilled that I felt well enough to take the kids to school that day 5 years ago. I had already begun my chemo treatments. Little C was just 3 years old and was still home with me. I remember thanking God that I was the one to send the boys off to 1st and 3rd grade. It was a prayer answered. I remember.

So Monday, my mind was flooded with thoughts of the last 5 years, again.

We had brought by C's supplies to class, earlier the past week and talked diabetes with him. And, since he is already familiar with our family, the diabetes issue was not a surprise. We greeted Mr. H. We talked for just a few minutes. Soon, we will be scheduling a 504 meeting soon, after things settle down a bit. I really just wanted to go over the very basics with him. C handed him a very cute pink box, loaded with D stuff. Teacher and C decided together where the best place would be for it...easy access to her extra meter, juice boxes, snacks and such.

We shook hands and turned to leave. He expressed to C how happy he was to see her name on his class list. "This will be a great year!" he said. "I remember having Big C in class 5 years ago."

"Yes," I replied. "I so remember. This will be a great year!"

Pasta Fazool

2010-07-23T08:00:00.000-07:00

The wonder child of Lorraine, Elizabeth and Karen!

I am happy to be participating in the First (Weekly?) D-Feast Friday!! It's a day for us to come together and share a recipe, diabetes-friendly or not, and walk away with a slew of new recipes to try! So, without further adieu...

Pasta Fazool

Now, this is a staple meal in our home and has been, long before diabetes entered the picture. But what's so great about it is that it really works great with C's blood sugars. And, as anyone who deals with a faulty pancreas can tell you, usually pasta is one of those foods that misbehaves. Because this recipe is balanced with beans, the fiber can actually be subtracted out of the total carb count. Hence, making it a more manageable meal, bloodsugar-wise.

Some of you might be more familiar with it's other name: Pasta Fagioli. It's kind of like a pasta/bean soup. My dear mother-in-law taught me how to make it. In fact, when each of the grandkids were old enough (11-12), she taught each of them how to make it too. Unfortunately, she is no longer with us to teach our kids. I have already taught my oldest and now middle C is next in line.

When I was still a newlywed, she brought a bag full of groceries to our little apartment and showed me exactly what to do. It's a challenge for me to write it down because it really does help to see it done. But, I'll try!

Ingredients:

2 (15 oz.) cans of Great Northern or white beans
+ 2 cans of water
1/2 can (4 oz.) of tomato sauce
+ 1 can of water
3 T. olive oil
2-3 cloves garlic, crushed
1 heaping T. oregano, crushed between palms
1 t. salt
1/8 t. pepper
1 c. ditalini pasta
1/2 c. spaghetti, broken into 1 " pieces
chopped onion for garnish (optional)

*Keep a couple cans of water near stove in case you need to add to pot when pasta is boiling.

Heat all ingredients (except pastas) in large pot to a gentle boil. Turn down to low and simmer for 30 minutes, stirring occasionally. Turn heat up to boiling again and add pastas...stirring every few minutes so that the pasta does not stick. Gently boil for 10-12 minutes. At 10 minutes, check the ditalini for done-ness. If, during boiling, mixture becomes too thick, add water. It should stay at a thick, soupy, consistency. (I like it thinner and usually add water when it's done. This cools it down a bit too.)

That's it! My kids love it and ask for it regularly. I wish I had a picture of it to share. But it's been so hot that I haven't made it recently.

It serves 6-8.

After much trial and error, I have finally found that counting a 1/2 cup serving as 10 grams of carbohydrates works well for C. But, please do your own calculations from the bean label and pasta packages. The great thing is...you can subtract out the 7 grams of fiber per serving from the carbs!

Enjoy! And, Happy D-Feast Friday!!

"LO GLUCOSE"

2010-07-16T08:00:00.000-07:00

So, whenever we change any type of setting on C's pump (basals, carb ratios, etc.), I'm not sure why, but it always takes a good 4-5 days until the true result is seen and felt. So, this time was no different. Slowly and ever surely, her numbers were calming down.
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Usually when we go to an appointment, her endo knows not to overwhelm us (me) with too many changes at once. But this time, C had been so high for so long, around the clock, that I knew I had to throw some of my caution to the wind and trust that it was for the best. Also, her doc was out on vacation, so I was working over the phone and the CareLink website with one of the nurses.

We increased every single basal setting and even added a couple new ones. We changed several carb ratios during the times of day when she would really shoot up high. And, lo and behold, this sweet nurse recognized that C's active insulin time was set at 3 hours, not the normal 2 hours...meaning the pump would calculate corrections knowing that any insulin coverage would last 3 full hours. Sweetly, and calmly, she told me that the 3 hour setting is "really only used for babies and toddlers."

"If we change it to the normal 2 hours, that will really help with her correction doses."

"Huh. Well, I guess it's still at the 3 hour setting because, huh, she started on the pump when she was still a toddler! Thanks for noticing that!...I was never told to change it once she got older." I had been enlightened. : )

"Now, be sure to do a few nights of 12 and 3 checks," she said as we were just about finishing up.

"Oh yes, yes we will. I'll email her doc in about a week so she can go over the new numbers. Thanks so much!"
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Days passed. And, like I mentioned before, C's numbers gradually started dropping back into range. Then a sneaky little low popped up of 60...and honestly, I was kind of glad. Numbers in range...ahhh! But then one low turned into 2 in a row. And then, there were more lows than highs. I backed off corrections. I began second-guessing my high-level carb-counting skills. The midnight and 3 am checks were continuing. And the "ZING" of anxiety shot through my body as I woke early in the morning. I lowered a couple of the basals again...

...and then, it was America's birthday!

We were busy with pancake breakfasts, parades, bounce houses, friends and family all weekend long. And C kept experiencing lows all weekend long. And, when we were standing in line to go into the local high school football stadium to await the glorious fireworks show, it happened.

I looked down at C, who was sitting on the sidewalk since the line wasn't moving. She looked pale. I tossed her meter to her and told her to check. And, then intuition kicked in. Slightly panicked, I shoved everything I was holding into my husband's arms. I dropped down and took over testing her finger. And, this is what the meter spewed back at us:

LO GLUCOSE

Okay, my heart did a swan dive into my stomach. I tore through her bag and ripped open a juice box. She downed it in seconds. I held the meter up to show the husband. I couldn't really even speak at this time. I shoved another test strip in the meter: 58. **Gigantic sigh** 58? We can deal with that! But what in the world was that LO GLUCOSE reading???!!!

I had never seen that before. In all the 6 1/2 years we've been doing this thing called diabetes...not once. I wonder, Has anyone else ever experience this nasty message?

Now, if you look closely (at my poorly photographed image), you'll notice that C tested at 58 only one minute after the LO reading. So, maybe that means, she really wasn't too much lower that one minute before. So, I'm still not understanding that message. Oh well.

To say the least, it was unnerving.

And, after contacting her endo the next morning, we gladly followed her advice to back off on some of those changes we had made the week prior. I asked her about the LO reading, but in her email, she didn't make mention of it. I'm sure it will be a topic at C's visit next month!

(Still uttering big sighs around here.)

Insulin Gone Bad?

2010-07-12T08:00:00.000-07:00

Just when I think Gee, C's numbers have been really great lately...boom! Relentless highs. I mean blood glucose readings in the 200s, 300s, and yes, even 400s. Gobs of insulin corrections weren't making them even budge at times.

These highs began happening as soon as the kids were out of school last month. But I couldn't figure it out. It didn't make sense. We were even more busy, with lots of activities...swimming included. And swimming always makes C go low. It was so frustrating.

What was totally insane was that it wasn't just at one or two different times during the day. It was round-the-clock. I'd get her down to the mid 100s with jumbo corrections, only to have her test in the 200s or 300s before her next meal. This continued throughout the nighttime. I did a couple of our famous middle-of-the-night-site-changes to no avail.

I began changing the site daily...opening another insulin vial, and then another. Maybe it's gone bad, I thought. Maybe it's a bad lot. I just kept pushing forward, checking and correcting overnight, feeling overly exhausted. You know this kind of tired...when the first thing you think of upon wakening is the bottle of Advil.

And then one day, I B-lined it for the pharmacy. The insulin must have gone bad, I kept thinking. Maybe they'll replace these vials that are barely used...I know, wishful thinking. But, I was tired. So off I went with C to the pharmacy. I asked to speak with the guy who's been there the longest, as long as we've been getting insulin for C. There are really only 2 employees left at our particular pharmacy who remember me from the beginning...the haggard, emotional mom who needed, yes, 300 test strips a month for her baby. He's one of them, so I thought for sure he'd see things my way!

"My daughter," I said, "her numbers have been crazy high. I've opened like 3 new vials of insulin in the last week. Could the insulin have gone bad?" I asked.

"Uh, no," Mr. Pharmacist said. "Let me see the cartons...Hmmm...no, they should be good. Our shipments go directly in refrigeration. She's possibly having a growth spurt."

A growth spurt? That really didn't cross my mind. Why hadn't it? I thought for sure the insulin had gone bad. Her numbers were high across the board. Usually when we make adjustments and tweek basals in the pump, it's because numbers are creeping up, sneekily...not all at once.

So, with blurry, sleep-deprived eyes, I nodded, "Hmmm," I said. "thanks." We headed back home...determined to make adjustments and figure this out. Over the course of the next few days, with some nurse help over the phone and internet, we adjusted every single basal setting and even added 2 more. We changed so many things! It made me nervous. I'm very much a fan of the scientific method of changing one variable at a time. But I knew we had to wrangle these numbers in a bigger way. So, that's what we did.

It seems to always take several days for any type of setting change to really work itself out and show results. We dug in for the long haul. I knew this meant lots more testing and lots less sleeping but...oh well. That's life with diabetes.

And, did the basal changes help? Boy, did they?! But that's to be continued in another post...
Insulin gone bad? Well, I know it can. But not this time. Now we have 3 newly-opened vials...ug.

Sometimes insulin can go bad.

But I Made Bacon & Eggs...

2010-06-15T08:00:00.000-07:00

It's been a few weeks now. I think I can sit back and write about this subject with a little more objectivity than I had at the time. I think I can...at least with as much objectivity that living with diabetes allows.

We had state standardized testing spread out between 2 weeks of school in May. This is probably nothing different than any other school, at least in our state. Letters had come home to inform parents of the testing schedule. They had some pretty big hints about not taking students out of school for any unnecessary reasons during these times. Giving our kids some extra protein-enriched breakfasts was also going to be appreciated by the teachers. Well...okay, I thought. I can do that!

Middle C put in his order. "Okay, mom, for the first morning before testing, I'd like eggs, bacon and toast!"

So, I did that. It didn't throw too much of a wrench into our morning schedule. Usually, my kids make their own breakfasts, consisting of cereal, toast or an English muffin. But, hey, the direction was specific...more protein. So I got up just a bit earlier, made the eggs, bacon and toast. (Okay, I used pre-cooked bacon!...in fact, I probably will never cook bacon again.) The kids were happy and tummies were full and off to school we went.

After I kissed and hugged them good-bye and did my usual stop at the health office, I crossed paths with C's 2nd grade teacher. In a flurry, she told me that the class would be snacking during the testing time and to just let her know "what C can or can't have!"

"Well, I'll just have to come by the room before recess to see what the snack is and what we should bolus," I said.

Oh, no..."you're not allowed in the room while we're testing," she explained. "It's not going to be at recess time. The children will be allowed to eat as they take the test...they'll be grazing," she said with a smile. She had done this for the last 16 years and felt that children did better and stayed calmer if they were allowed to eat during the test. All the while, we were walking quickly to the lines of students, as the bell had already rung. She rattled off several different snacks and added, "and so-and-so's mother is bringing in fresh fruit! Isn't that lovely?"

Lovely? Hardly. What was happening here?!

The teacher had the stack of tests piled high in her arms. I could tell she was in a hurry for our conversation over crackers and fruit to end. "Just tell me what she can or cannot have and we'll be fine!" UG! I felt so not fine at the moment.

"Uh....hmmmm..." I didn't quite know what to do. I raced into the classroom and saw all the different snacks that had been brought in. Why I wasn't notified about this was beyond me. It is even stated ever-so-clearly in C's 504 plan that "the parents (that's me) will be notified prior to any extra food offered in class for special events."

"What can she have?" The room was filling with kids, scurrying around us.

"Uh...she can have anything," I said. "She just needs to test and bolus for it." Why, at the end of May with just 3-4 weeks to go, I was needing to explain this basic type 1 fact again...ug.

I grabbed some animal crackers, checked the carb count, counted them out, found a paper cup and wrote the grams on it. "There," I said. "She can have these...no fruit though. It's not here for me to see it and count it and feel comfortable about it. (Uncomfortable about fruit?...yes.) But she will need to test before and have the health aide work the pump for the bolus."

Well now, that did throw a wrench into the whole "calming, snacky-eating thing" for the entire class! I was told that C could not be leaving the room to go down to the health office during the test.

"Hmmm," I said, "Can't the Health Aide come into the room to do it?" I felt like I was asking for a small miracle.

Eventually, things got worked out by the end of the week. The second half of the testing schedule went along much smoother. But, sheesh!...it was pure craziness, I tell you. Nearly at the end of the school year and I was still trying to explain C's diabetes management.

As I drove home, I kept thinking to myself But I made bacon and eggs. I did just what they said to do. Yep, I made my kids a big ol' breakfast. Why does C need to snack on animal crackers, pretzels or whatever? I made a big breakfast.

In reality, I do know why C needs to snack on those yucky, dry, little animal crackers. She needs to be just like all the other kids. And we want her to feel normal...even with diabetes.

5 Years.

2010-06-08T19:25:00.000-07:00

Today marks 5 years since my breast cancer diagnosis! It seems like yesterday and yet, at the same time, it seems like forever ago...

As you can imagine, this date holds a lot of memories for me, both good and bad. And, as it approached, I knew I wanted to contact you with heartfelt gratitude for the role you played in cheering me on through the muck of it all.

I will never forget all the wonderful emails I received during those dark months. In fact, I've kept them all in a file, because some are just too precious to delete! I will never forget the gifts and meals that were brought to our home to lighten the load. I will never forget the anonymous, GIGANTIC basket full of goodies that was delivered to our doorstep before Thanksgiving! (I did finally figure out who sent it...hahaha!) I will never forget the phone calls, the flowers, the notes, the PRAYER that covered me and my family. I will never forget the dear friends who flew into town just to be with me...who came over just to rub my back when every inch of me was hurting from the chemo.

My sweet church family banded together and paid for several months of a housekeeper, so that I could rest comfortably in a clean home. Gift cards were given to us for restaurants so that we wouldn't have to think about meal preparation.

And, I will never forget the few special people who spent countless hours learning how to care for our little Claire who had been diagnosed with type 1 diabetes just a year and a half earlier...and then, they actually cared for her!...doing checks in the middle of the night so that Dan and I could rest.

Did I mention the friends who didn't say "call us if you need anything!"...instead, they actually called me..."have the kids ready by 9 am," they would say, "and they will be returned clean and ready for bed by 8 pm." No, I will never forget all of you.
__________________________________

It's been 5 years. Because this special date was coming up, I asked my oncologist about it at my last check in April. I asked her about the 5 year mark. When do we count the 5 year mark? Is it 5 years from diagnosis? 5 years from surgery? 5 years from the end of treatment? I was confused.

She told me that patients are always asking her that. And, medically it would be 5 years from the end of treatment, when bloodwork shows no evidence of disease.

"However," she said, "I think you should celebrate on June 8th."

: )

As I've contemplated this day, it dawned on me that my most sincere prayer has been and is being answered. I am here, raising my kids. Thank you, my dear Lord and my God!!

Claire was just 3 when I was diagnosed. Chase was 6. And Cole was 8. What a difference 5 years truly makes! We now have a teenager! Chase just turned 11. And Claire, the youngest is 8 years old.

I told my 11 year old that today is my anniversary. He looked puzzled. "Your wedding anniversary?" he asked. "I thought that's in July."

"Noooo," I said.

Without hesitation, he said, "oh, it's your breast cancer anniversary...your cancer-versary!"

"Yes. Yes, it is."

So that's what I'm doing. Celebrating. 5 years.

Dream a Little Dream...

2010-05-16T08:00:00.000-07:00

Day 7 of Diabetes Blog Week: Dream a Little Dream

Life after a cure...

I don't let myself imagine this very often. Hmmmm. This is difficult. Life after a cure?

I think on the day of a cure, I'd want to pack everyone up in the car and head to the beach. We would eat, play in the sand and swim all day long. I would throw a big bag of chips down on the blanket and let my kids have at it.

I would never want to look at another carb count for the rest of my life. I would never again count out 55 fish crackers. I would throw away all but one set of measuring cups. I would fill our top kitchen cabinet with paper goods instead of pump supplies.

"Feeling low" would simply mean that C was sad. And when I'd find her crying, the first thing I'd do, instead of reach for her monitor, would be to hug her.

An invitation to a sleep over would no longer send chills down my spine. A trip to the self-serve frozen yogurt store would be much less intimidating. And buffet style meals would be friendly again.

Maybe spontaneous adventures would return to our lives. Maybe. I'm just saying, I have difficulty with this one, diabetes or not.

My thoughts on this topic are very dis-jointed. I can't seem to get complete ideas down. I don't know.

Diabetes Snapshots...

2010-05-15T08:00:00.000-07:00

Day 6 of Diabetes Blog Week: Diabetes Snapshots

Showing off her new leopard pack.

On our plane ride to Orlando.

Taking care of her own bg check.

A1c report card.

World Diabetes Day.

The new pink pump.

Site change, ready.

This always brings joy.

Well, after pulling up a lot of pictures that portray diabetes, I found this one. And actually, I like this one the best.

What does diabetes look like?

Sun-kissed, freckle-faced, and full of life.

Let's Get Moving...

2010-05-14T08:00:00.000-07:00

Day 5 of Diabetes Blog Week: Let's Get Moving...

Although sports and different activities can be challenging when diabetes is involved, we're determined to not let it stop C. Whatever she's shown an interest in, we've let her try and try again. Here is a run-down of her experiences:

Sitting out of a soccer game because of a low blood sugar number.

sport/activity and their biggest diabetes challenge

dance (ballet and tap)...skin-tight leotards over a pump site
swimming...the old "unhooking/hooking up" pump trick
soccer...trying not to go low and staying in the game
gymnastics...skin-tight leotards, again and rolling/falling on site
softball...protecting the pump and staying on top of bgs
beach time...pump site and sand...need I say more?

And of course, along with all these forms of exercise, there is the danger of hypoglycemia, when and how often to test, and how to shove down a snack if need be. The biggest upset is when, in fact, C does test low and she needs to sit out of the class, game or practice and wait for that bg number to come up. It's happened on many occasions with just minutes to go in an exciting game. Ug.

Sometimes we fly by the seat of our pants. But we're determined to let her try new things. It takes constant thought and preparation. It takes mine or the husband's continued presence at all practices and games. It takes open and honest communication with coaches and teachers. But when we see her hit that ball or make a winning pass, she's beaming. That makes it all worth it.

Carb-o-licious

2010-05-13T08:00:00.000-07:00

Day 4 of Diabetes Blog Week: To carb or not to carb?...That is the question for the day.
By the title, I'm sure you can guess on which side of the fence I stand!

Our daughter, C, was diagnosed when she was just 22 months old. Whether or not she would eat carbohydrates was not a question for us. The question, rather, was how to count the carbs and bolus accordingly.

In the hospital upon diagnosis, the cafeteria staff definitely did not know how to feed a toddler with type 1 diabetes. When meal time came, and a nice young candy-striper brought in C's dinner, I couldn't even imagine even myself eating what was on that tray. Here's what I remember: some kind of unidentifiable meat smothered in gravy, a mound of mushy vegetables, hot water for tea, a lemon slice and an enormous amount of sugar-free lemon Jell-o. Yes. This was what they offered my baby to eat. The next meal looked way too similar to this. And, the next. And the next. Finally I asked the nurse "Do you think they have a different flavor of jello other than lemon?" It was ridiculous.

She was down in her weight as it was. And there's only so much sugar-free lemon Jell-o a person (at any age) can swallow. We began sneeking in food that a toddler might actually eat: mac 'n cheese, fish crackers, cheese. It was so great to finally see her weight increase. She had been, literally, starving!
______________________________

We don't place restrictions on what she can and can not eat. The exceptions are: regular fruit juice, regular soda, strictly sugar-y candy, regular popsicles and the like. Those items are reserved solely for treating lows. And, of course, there are the times when an extremely high blood glucose number dictates whether she can have a snack now or later. It's a constant balancing act.

Some foods are just more difficult to count...but we work hard at it. We have our problem foods (pizza, pasta and anything with corn in it) but we don't deny her these things. We may not hit the mark each time, but we correct and move on with life. We want C to grow up with healthy eating habits and a great self image. We want her to enjoy food, to feel free in choosing what to eat. I guess you could say we want her to have her cake and eat it, too!

"Lemon Jell-o?"

"No, thanks. I'll have the chocolate cake!"

Our Biggest Supporter(s)

2010-05-12T08:00:00.000-07:00

Day 2 of Diabetes Blog Week: Our Biggest Supporters

Okay, well, hmmmm...

Not to go the lazy route, but I feel it only fitting to refer to a post I wrote several months ago when I was privileged enough to be the featured blogger for the Diabetes OC.
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C was diagnosed on December 29, 2003. A diabetes community? We were it. We knew no one else who had type 1 diabetes. Our family and closest friends were as supportive as could be, but they, too, had no idea what this disease would mean for our family. It felt as if we were placed inside a maze. The only thing we could do was move forward.

Hospital. Education. Prayer. Sleepless nights. I remember being discharged from the hospital on a Friday. We had to be on our own until Monday morning when we were set to be at CHLA (Childrens Hospital Los Angeles), where the doctor assured us that we’d be taken care of. But we had to get to Monday. I was so scared. Injections? All on our own? I had dropped out of the nursing program in college because of this. The perfect irony.

I used the doctor’s cell phone number several times that weekend. But we did get to Monday. There we were at CHLA, learning soooo much. My head ached. We were given a gigantic notebook full of diabetes stuff – carbohydrate counting, scheduling, the different insulin, injection sites, etc.. And, that’s when we first met those wonderful people at CHLA…Dr. K and the dear, sweet nurses. How we clutched to them for our daughter's very life.

So, now, it was us, close family and friends, the CHLA nurses and Dr. K...our diabetes community. It was scary. It was lonely. Because, really, when we came home, and we weren't on the phone with the nurses, and Dan went back to work, and the boys were in school...it was just us...C & me.

Family and friends surrounded our little family with meals and help with the boys. But when it came to the diabetes stuff…I was it. I remember thinking “I did not sign up for this.” But as you all know, the job was mine, applied for or not.

On the phone with nurses constantly...I can still hear their calming voices, helping me to gather my senses enough at 3 in the morning to measure and give an injection of 1/8 of a unit of insulin to my baby.

During one of those first weeks after diagnosis, I had to get my wits about me in order to pick up my oldest (then, in 1st grade). As I wheeled C’s stroller past the classrooms, someone came walking right up to me...gave me the biggest hug with tears in her eyes. “My name is K, and I know exactly what you're going through.” She handed me a bag, over-flowing with goodies for C...cute band-aids, Crystal Light mix, small bags of snacks (clearly marked with carb counts), stickers, small toys, a wonderful purple teddy bear...and her phone number. She said “diabetes is so difficult. Call me whenever you want.” Come to find out, her daughter was a second grader that year and had been diagnosed when she was just 3 years old.

So...now it was us, friends & family, CHLA staff, and now...K & her family. I can't tell you what a comforting thing it was to hear her say that diabetes is terrible...it's so difficult. In a strange way, that eased the burden slightly. Because, finally, someone else felt it too. I wasn't alone. To this day, when someone tells me something like "Oh diabetes?...Well, at least it's manageable." Oooooh...I just want to scream! It’s hard, people! And, no, sometimes it’s not manageable at all.

Well, time has passed. It’s been over six years of learning, failing, trying… In those five years, we have met 3 other families in our immediate city with type 1. I have passed on the goodie bag to another family I heard about through a friend. We’ve met a newly diagnosed toddler and family at a neighborhood park to talk to and encourage in all this crazy stuff. We’ve been welcomed with open arms to a JDRF walk team and have joined them for the last 4 years. We’ve spent time at Family Camps through CHLA talking with dozens of other families with stories so similar to ours.

So…now it was us, friends & family, CHLA staff, K & her family, 3 other families, our walk team and…

Enter the DOC.

I’ve been a lurker for years now. It started with searches about diabetes, the pump, a 504 plan, etc. And then, I came across a blog about real life with type 1 diabetes. This was a young woman’s life, out there, nearly every day for me to peer into, and learn, and laugh. Her writing encouraged me so much. Here was this lady, living a full and eventful life…with diabetes. Her writing was so rich, so vibrant, so full of humor! What hope I found at her site, sixuntilme.

Kerri’s blog pointed me to others. I couldn’t believe the wealth of diabetes knowledge I found…not from medical people, per se, but patients themselves. These were real people living wonderful lives, despite diabetes.

So…now it was us, friends & family, CHLA staff, K & her family, 3 other families, our walk team and “just the tip” of the DOC.

___________________________

Since writing the above post last June, we have met 3 more families living with type 1 diabetes. I am always amazed that there is such a strong connection with these people. I lean on the wisdom and experiences of other D parents who have spent many more years on the management of this disease. It is often refreshing to simply get a different perspective on life with diabetes.

And...in the last year or so, there have been connections made with countless PWDs (people with diabetes) in the online community. I have felt such a warm welcome from them. And though I do not deal with diabetes in my own body, these people have surrounded me, as well as other D parents, with open arms. What a great comfort to know that, really, at any given time, day or night, I can go to them with a thought, a question or simply a need for someone else to know what I'm feeling.

Making the Low Go

2010-05-11T08:00:00.000-07:00

Day 2 of Diabetes Blog Week: Making the Low Go

I was just talking to another D Mom last weekend about this actual topic...fast-acting sugar sources. I'm always curious about what other type 1s use for lows. Juice is an obvious choice. For us, a juice box can get C's number up fairly quickly but continues to make it climb until she's left with a nasty high number and then the yo-yo effect takes on a life of itself, not settling down for, sometimes, hours.

As we talked, a flood of memories came back to me, surrounding all the gobs of information we tried to digest at the time of C's diagnosis. We were given a matter-of-fact sheet of paper with a list of fast acting sugar options. They included: packets of sugar, tubes of frosting and life savor hard candy. Of course I ran out and bought it all. We had 2 tubes of frosting at the bottom of her diabetes bag for nearly 2 years. Never used it. Finally we got rid of them after one exploded from being jostled around for so long.

Yeah...a tube of frosting..."yuck," we both agreed, my new D Mom friend and I.

She told me that her son, now 17 years old, had always been told by his endo doc to use the standard glucose tablets. But when he was younger (diagnosed at 6), she would fix him a "sugar shot." This was a mixture of 1 tablespoon sugar dissolved into a Tupperware Tiny container of water. "It was one gulp," she said. "It was quick, easy and he loved them."

During my tweet-up time with Melinda, another D Mom, her advice on bringing up a low, was chocolate milk. It kind of goes against the rules of fast-acting sugar sources as it contains more than just sugar. It has fat and protein, as well. I've always had the understanding that anything but pure sugar-y carbs can possibly slow down the blood sugar rise. I wasn't too sure about this one, but we went for it recently. And, by golly, it seems to work like a charm! We've gone through several containers of chocolate milk in the last couple months. There is a high enough sugar content to get that blood sugar up quickly. The fat and protein help prevent any crashes, especially near bedtime or in the middle of the night.

***I guess this is where I must reveal that, although I have a ton of experience with my own daughter's diabetes management, I am not a medical professional. And, any information you may read here is not meant to be advice for anyone to try at home without first seeking the professional, medical advice of your own doctor.

I'm always on the look-out for new ideas. Those glucose tabs really do their job quite well. They're convenient, portable but kind of expensive. And sometimes, I hate shoving those big chalky things in C's mouth. We've ventured a bit, in the last year or two, into the candy realm: Smarties, jelly beans, Skittles. But candy has been a little unreliable for us. She may clock in at 63, eat a couple candies and retest even lower. At which point, we tend to panic and over correct. Then we ride the rollercoaster for several hours.

We're liking the chocolate milk thing, at the moment. We might try the sugar shot idea next. I can't wait to post this thing and cruise around the blogosphere to find some new ideas from others out there!

A Day in Our Family's Life...with Diabetes

2010-05-10T08:00:00.000-07:00

Thanks goes to Karen, my knitting friend, over at Bitter-Sweet, for rallying the bloggers in the DOC for the 1st annual Diabetes Blog Week! It's an awesome idea. And she already has a list of 100+ bloggers set to type their hearts out this week! Way to go Karen!!

And, it's not too late to join in the fun! Just head over to her blog and let her know you're in...She's even gone the extra mile and given us some great topics. I totally appreciate that because I could use a little jumpstart this week. : )

DAY 1: A Day in Our Family's Life...with Diabetes

6:30     Wake up; get myself together

6:45     Go down the hall...wake up Middle C, wake up Big C, go in and do first bg check on C...123...beautiful!

7:00     Set out breakfast stuff...make lunches...re-stock C's bag...bolus C accordingly...say the words "hurry up!" about 100 times...teeth brushed, hair fixed, sunscreen on...

7:50     Out the door with C and Middle C...pick up one of C's friends

8:00     At school...quick prayer...hugs and kisses...say bye to Middle C...walk w/C to Health Office...drop off diabetes bag and snacks...chat with Health Aide...one more hug to C

8:20     Back home...turn on computer...put a load of laundry in...COFFEE...chat with Big C as he gets ready

8:40     Out the door with Big C...pick up one of his friends

8:50     Drop off the boys at middle school crosswalk (no hugs in public...just a "see ya later" and a "have a great day!"...got my hug at home!)

9:00     Back home...back to work

9:45     Get a call from school: C's at 101...Health Aide will bolus for a 10 gram snack

9:50     work, cleaning, laundry, errands

11:45   Get a call from school: C's at 89...Health Aide will bolus for 31 gram lunch

12:00   Lunch for me!!

1:00     Get a call from school: C's at 167...good number prior to PE class...no correction bolus...back to work for me

2:05     Pick up C and little friend...drop friend home

2:15     At home...wash up...bg check: 118...bolus for snack...18 grams...start homework

2:50     Pick up Middle C

3:00     Finish up snacks...homework...piano practice...talk about the day

3:30     Pick up Big C...rinse and repeat!

3:45     bg check: 178...good number prior to gymnastics...detach her from the pump

4:00     Take C to gymnastics class...hang around class with boys dressed in baseball practice clothes of course!...leave class to drop off Middle C to his practice

4:45     Back to gymnastics to pick up C...bg check: 113...perfect!...re-attach pump...

5:00     Drop Big C off at his practice

5:15     Back home to dinner already prepared in the crock pot...fix salad...C sets the table

6:30     Everyone's back home including the husband...bg check: 100 (love that #!)...DINNER!

7:00     Dishes...showers (unhook C from pump..."free shower" perhaps?)...finish homework...TV...relaxing...site change for C

8:30     Goodnight to C and Middle C

9:00     Goodnight to Big C

9:30     Bg check: 125...relax...finish up computer work...TV shows...

11:00   Check on kids...one more bg check: 119

Sleep...

Okay...I confess that the above scheduled day has NEVER happened. Maybe it is my perfect day with diabetes...Maybe it's what I'd like to experience on a regular basis, with diabetes. But the truth is: there are no typical days with this disease. There are those times when C will have several in-range numbers in a row...and it's awesome! And, those readings of "100"...love them! (Sometimes we love them so much, we take pictures of the meter!!) But honestly, diabetes does not behave in any typical pattern day to day. In fact, C could eat the exact same foods, same amounts, same boluses of insulin...even the same amount and intensity of activity and get a huge range of numbers.

It's tiring. It's frustrating. And sometimes, it's very unmanageable. But, we persevere. We must.  We continue to strive for those in-range numbers, 70-120 or so...

On many days, there are mistakes made. C's diabetes bag might be forgotten at home. I might overlook that she's down to just 1 test strip. There have been countless trips back to school. The nurse might be absent and the checks are up to me to do. There have been mornings when we've forgotten to bolus for breakfast and she ends up at 427.  I've raced down to school to do emergency site changes when the tubing has major air trapped in it or her site was pulled out at recess. Or, maybe she's had a couple big numbers in a row and, no matter, how much we correct her, she just doesn't come down.

So, a day in our family's life...with diabetes? It's different every day. It keeps us on our toes.

...as for coming home to a prepared meal in the crock pot??...rarely does that happen!

A Real Sob Fest

2010-05-03T08:00:00.000-07:00

This has never happened before. It seriously pulled the rug right out from underneath my feet...and it hurt (we have tile floors.)
C does not remember life before diabetes. She was still a baby when the diagnosis was given. Finger pokes, injections, site changes, 3 a. m. gulps of juice? They're just a part of her life. She's never known differently. In fact, I honestly marvel at how she handles it all...most of the time. She is a strong girl. So her reaction the other day really took me by surprise.
_______________________

For us, I would estimate that 80 % of site changes are relatively painless and go off without a hitch. But then there is the other 20 %. For sometimes unknown reasons, the infusion set just doesn't cooperate. It may hit scar tissue or a nerve and it can send C an excrutiating *zing* of pain...I hate when that happens. When this is the situation, I usually ask her, "Does it hurt enough for me to pull it out and try again?" There has only been one time when she said, "yes."

So, the other day when we were changing the site, it happened to be a bad one...you know, one of the 20%. But, we got past it with just a few tears and I continued cleaning up the pump site aftermath. I was just about finished when I heard quiet sobbing from the family room.

I walked in and found C quietly crying into a pillow on the couch. I asked her if she was alright, did her site still hurt? Through her choppy, tearful breathing, she told me her site was fine. She brought her head up from the pillow, looked me in the eyes and said, "When I grow up, I don't want to have diabetes!"

Well, it didn't take long until we were both sobbing and hugging each other. Could this have been the moment when her reality hit her square in the heart? I want to cry right now just thinking about it. At 8 years old, she was formulating the intelligence to know that diabetes is a life-long disease. Just like that. I was at a total loss for words.

We sat. Hugging. Crying.

I have tried with all my might to not let on how scared I really am regarding this disease, at least to her. I've tried to stay strong, to find the positives in all of it. We do the 3 month endo visits, the JDRF walks, the fundraisers. However difficult it is, I reach out to people and share about her diabetes management to those around us. And, yes, I do cry...but not in front of her. Never in front of her. This day was different. I could not hold it back.

Through leaky eyeballs, I told her how I wish I could take this from her. If, somehow, God could miraculously remove diabetes from her little body and put it in me...I would gladly accept it. I told her how sad I was when she was diagnosed. And how much it hurt my heart to poke and prod her. She was my baby.

We did more hugging. Middle C walked in the room whistling a tune. He took one look at us, raised his eyebrows, made a 180 degree turn and walked right back out. Thank God for that. C and I looked at each other and she gave a little chuckle.

"We must look like a mess!" I said.

Never fear, we ended our sob fest on an upnote. We both breathed deeply. I told her what a brave and strong little girl I have. She, of course, corrected me. "You know, I am 8 now Mom!"

"Yes, honey, you're a wonderful 8 year old girl." I said. And, I let her know that I would always be there to help her with diabetes. And that we would continue hoping for a cure and doing the best we can.

"I truly believe God has big plans for you, Sweet-pea. You're gonna do great things in your life...maybe even because of diabetes."

Honored to Be a Guest...

2010-04-29T07:29:00.001-07:00

I am beyond thrilled to be guest posting over @sixuntilme! Kerri is enjoying the first few weeks of motherhood. She has been so gracious in allowing others to fill up her blog while she gets to know her new precious baby girl. And, I was so happy to be her guest!

So, go on over and take a peek...I share about meeting another D mom...this time, in person! Can you tell I'm excited?!!!

Soothing to My Soul

2010-04-27T08:00:00.000-07:00

Life's stressful...don't you think? Just in general, I mean...for everyone. I really believe it compounds each year...at least for me. Life becomes richer with experiences and adventures but can also become more stressful.

And, we've all heard it...how to manage the stress, right? Eat well, exercise, get enough sleep, pray. Sometimes coffee talk with a good friend does the job. Take a vacation. Get a massage. I used to take a drive to reduce tension...but with gas prices what they are, that idea might raise the stress level!

On our last trip up the coast, our whole family was introduced to a new stress-relieving, calming, peaceful activity: sea glass hunting. I have been making the pilgrimage to the Monterey Bay area ever since childhood. You think I would have discovered this outstanding stress-reducer at some point over the years. But it took a new friend to mention it to get me to actually do it. She even hold us the secret location of her favorite sea glass beach!

Well, it took some prompting to get all the kids on board with the idea. And the husband wasn't really all that interested in it. But there we went...not entirely sure of what we were hunting. The kids took off to explore the rocks and tide pools. Then, I started looking down at the sand. Sea glass? What the heck does it look like? All I saw was sand! I bent down to get a closer look. Huh, green. That's not sand. I picked up a speck of green glass. It was tiny, but pretty, smoothed by countless waves driving it into the sand. Sea glass! I had found some.

I showed the husband. He had found some with amber hues. We dropped to our knees and began sifting through the sand with our hands. As we made our way up the beach, away from the water we found ourselves finding more and more bits and pieces of these little jewels. The kids came scurrying over to see what we were holding.

"Oh, sea glass!" Middle C dropped to his knees and joined in the hunt. He came across several, beautifully frosted white pieces, rather large. He had a big smile on his face.

C and Big C were kneeling down next to the husband, enthralled in a unique find of blue. It was the palest shade of blue, almost in the shape of a teardrop.

"That's beautiful!" I said. "I want to find some blue too."

So, there we were, now all sitting on the sand moving our hands back and forth just at the surface. I really had to be down, so close to the ground. There, I could see the large-grained sand as individual pebbles, beautiful in and of themselves. My hands were feeling heavy and relaxed.

"We really should get going," I said.

"Yea," the husband replied back. "Maybe a few more minutes."

Twenty minutes later, I found a gorgeous blue piece. The blue, it seemed, was the most rare to find. It became the coveted color. And, when found, we would all shout out "blue one!"

After another 20-30 minutes, I finally mustered up the energy to stand up, gather the kids and begin our accent up the stairs from the beach. All the while, we walked with our gaze downward for the slight possibility that we would find another treasure.

Last one off the sand? The husband. He was hooked. He even found an old crumpled up silver spoon! You can see it in the picture below. Oh, the kids had a great time discussing the pirate ship that must have lost it hundreds of years ago! (I kept my thoughts to myself. It probably fell out of the restaurant window just above the beach maybe a month ago!)

Our finds of the day! You may see a ladybug in there, just for good measure...

Sea glass hunting. It was definitely soothing to my soul. I've added it to the list of stress-reducing activities. Now, if I only lived near the beach...

LOST.

2010-04-20T08:00:00.000-07:00

It's nothing much to look at. It's plain, old-fashioned really. For years I've thought We need to get a new one. It actually looks like the one I had as a young kid. But now there are so many cuter choices out there. So why was I so sad when C had lost it last week?

I'm talking about C's medic alert bracelet:

There are the dog's paws on the floor...she thinks I'm holding a treat!

Halfway through softball practice on Thursday night, she yelled to me "Mom, I lost my bracelet!" She looked panic-stricken.

I told her that it would be fine...to get back with the team. She was certain she had it on at the start of practice. She had taken a pretty big hit in the arm earlier. Maybe it had come off at that time. So, I began scouring the field. One of the coaches came over to help. We looked and looked. Nothing.

I told him it was no big deal...that she really needed a new one anyway. But inside, my emotions took me by surprise. I was sad. Gosh, she had worn that thing since the age of 2! I don't even have a good picture of it. I was getting all sentimental about it as I walked back and forth over the field.

When practice was over, C gathered her equipment. As we walked to the car, she said, "Mom, we just have to find my bracelet! I need it."

"Oh, hopefully we will, honey. Let's just hope and pray that a nice person finds it and takes the time to call us. At least our phone number is on it! And...if we don't find it, we'll order another one...maybe a real cute one with beads on it!"

"Okay," she said. "But how long will we wait. You know I really need it in case of an emergency, remember?"

"Yes, honey, I know! If it doesn't show up in 3 days, we'll get you a new one." What do you know? She takes after me.

Oh, and get this: a baseball dad on our son's team called the very next day and said that his daughter had found C's diabetes bracelet at the field! He had it and would give it to her on Saturday. Yay!! (But, I still think we will order a new cute one soon!)

8-10 Ladybugs a Day

2010-04-16T08:00:00.000-07:00

I just can't wait. I'm impatient. I wrote up a post a couple days ago about meeting another D mom, Melinda (aka @notsostilllifes) last Friday! I'm trying to sit on my hands so I don't write about it yet...because...well, it's already written, but it won't show for a couple weeks. Aaaacckkk! I'm impatient.

But I want to at least share a picture of C's new little ladybugs that were gifts from Michael (18), Melinda's type 1 son. When he was younger, they would call the drops of blood for glucose checks, ladybugs. She said he had a ton of them, from stuffed ones to pictures to maybe something like these cute little glass ones. They're adorable, don't you think? I guess it's kind of like making lemonade out of lemons!

C says "thank you, Michael!" And thank you, Melinda, for some new perspective.

This one is "Frankie." And, yes, all the others have names too!

5 Years of Pumping!

2010-04-14T08:00:00.000-07:00

C has had type 1 diabetes for more than 6 years now (6 years, 3 months, 17 days...to be exact).

During the first 2 months post diagnosis, she was on a strict injection regimen with 2 kinds of insulin: regular (R) and NPH (I can't, for the life of me, remember what that stands for...). Bleh. It was horrible! Does anyone still use that therapy??

I remember being instructed to "roll" the insulin...don't shake it! After mixing it, for some awful reason, we had to double draw the two kinds together. Ug. I shudder just opening up the memories about those early diabetes days.

These two insulins peaked at certain times, long after injected. So, eating meals at exactly the same time each day was very important. Fortunately and unfortunately, C was just a toddler...so she was home with me most of the time. But that about took over our days...watching the clock, hoping and praying she would eat what we had covered with insulin, hours prior. It was grueling. (And, yes, there were times when I'd resort to ice cream or cookies, just the get the carbs in her.)

And C was so tiny...not yet 2 years old. We were testing her blood glucose A LOT. I can't really even convey how difficult it was to wake up at 3 in the morning, find her at some ridiculously high number and have to draw up 1/8 of a unit of insulin through the fog in my head. Sometimes, I would literally have to stop, shake my head, walk downstairs, get some water, walk back upstairs, look in the mirror and make certain that I was awake enough to do it. I'd tiptoe down our creaky hallway, stick my baby with a needle, and then try to go back to sleep.

So not the life I dreamed of...

By the end of those first two months, C's doc could tell we were having an extremely difficult time with it all. He switched her to Novolog and Lantus. Why we were ever on the first plan, God only knows.

Novolog and Lantus...so much better (at least, for us). Lantus was 1 injection daily and acted as her basal dosing (keeping her numbers in check, when not eating). Novolog was injected whenever she ate, even snacks. So, we tried as much as possible to keep it to 3 meals plus 2-3 snacks daily. Each time she ate equaled a shot. Gosh, thinking about it, I don't know how we got through that time! Toddlers are like cattle...constantly grazing.

Dr K would mention insulin pumps at each visit. I suppose my hesitation simply stemmed from yet another change. I don't do change well. Though the Lantus/Novolog combination wasn't easy, it certainly was easier than that first juggling act we tried. There were more classes to take in order to learn about the pump. The only other type 1 kid we knew didn't have a pump. And it seemed that her endo felt she needed to be in better control in order to even think about pumping. (I know, that sounds crazy, doesn't it?!) And, of course I searched countless nights on the computer googling "insulin pumps for kids," and honestly, some of what I found scared me. A technical device on my 2 year old, 24/7? I just didn't know what to think.

Over the next several months I continued learning more about insulin pump therapy. It finally dawned on me that what we needed, was better control of her numbers. The long-term effects of high glucose numbers can be devastating. And C had the added challenge of being diagnosed at such a young age, giving her more time with diabetes and, therefore, higher risk for complications.

Well, I remember just waking up one morning and thinking, We've got to get her on a pump! So, after nearly 14 months of MDI (multiple daily injections), we found ourselves sitting at CHLA in a pump class with our, then, 3 year old. Another whirlwind of information. (If there's any advice I could give in regards to starting a child on the pump, it's this: Do not drive all the way home from a Grand Canyon trip with 3 young kids and then get up super early to drive into Los Angeles to learn all day long about putting your youngster on the pump...it will drain you!)

Anyways...we made the switch, however bumpy it may have been. But I'm so thankful that we did. Diabetes still stinks. But life with a pump is a lot more forgiving. No more drawing up syringes in public. No more transporting insulin vials with us everywhere we go. We can be more descrete if we want to be. But the main thing is that we're doing the absolute best we can for C.

Yes, there is talk about artificial pancreases (pancreei?), promise of reversal in mice, and even transplants. But until something comes along that seriously tips the scales in the right direction, I believe that C will keep on pumpin'!

First day with "Pinky" (C's 2nd pump)

When I Think About Diabetes...

2010-04-08T08:00:00.000-07:00

When I think about diabetes, I think about:

blood drops
trips to Los Angeles
lots and lots of test strips
a blood spotted pillow case
juice boxes
time
speckled fingers
snacks, snacks, snacks
math
measuring cups
midnight
explanations
carbs
numbers
tissues
the past
the present
the future
a little girl

When you think of diabetes, what do you think about?

Brown Paper Packages...

2010-04-06T08:00:00.000-07:00

-Brown paper packages tied up with strings...
These are a few of my favorite things.
-Rodgers & Hamerstein

Well, our brown cardboard package came by way of UPS today. (That doesn't sound nearly as romantic as a brown paper package, tied up with strings.)

My heart seems to leap each I open our front door to find it there. For some reason, I always feel a huge sense of relief. Maybe it lightens up the stress of getting those meter errors and wasting a test strip. Maybe it's the sense of preparedness it brings and helps me feel like we're properly stocked up. Or maybe it's the memory of having to drive my preschooler out to Northridge, California (home of Medtronic) because we actually did run out of supplies during our first months of pumping. I don't know. But I certainly like the feeling of a full supply cupboard.

Cookie-Baking Weather

2010-03-04T08:00:00.000-08:00

A couple weeks ago, during one of our few big storms here, it was definitely "cookie-baking weather." I enlisted C's "help" and had her measure and pour. We had a great time together making honest-to-goodness Oatmeal Raisin Chews...minus the raisins. (Who would choose to ruin cookies with raisins anyway?) And, we threw in 2 cups of chocolate chips instead.

You may be saying to yourself Hold on there!...Your daughter can eat that? But she's diabetic. I'm all for dispelling diabetes myths, so here we go...

Diabetes or not, a little kid needs to enjoy a cookie now and then.

I thought I'd share one of our favorite recipes from none other than...Mrs. Fields! When I was first married, my mom gave me a Mrs. Field's Cookie Cookbook. I don't even bother with other recipes anymore. Nothing has come close to her Blue Ribbon Chocolate Chip cookies. After giving C's teacher a bag full of the sugar cookies in heart shapes for Valentines Day, she practically begged for the recipe. I am not exaggerating when I say that these recipes are the best!

Oatmeal Raisn Chews

(But, you know...no raisins and...lots of chocolate chips!)

2 1/4 cups all-purpose flour

1 tsp. baking soda

1/4 tsp. salt

1 cup quick oats (not instant)

1 cup dark brown sugar, packed

1/2 cup granulated sugar

1 cup salted butter, softened

2 tsp. vanilla extract

2 large eggs

1 1/2 cups raisins (but don't do this!...use 2 cups chocolate chips instead.)

The oats make them healthy!...okay, maybe not.

Preheat oven to 300 degrees.

In a medium bowl combine flour, soda, salt and oats. Mix well with wire whisk and set aside.

In a large bowl, blend sugars with electric mixer set at medium speed. Add butter and mix to form a grainy paste. Scrape down sides of bowl, then add vanilla and eggs. Mix at medium speed until fully combined.

Add the flour mixture and blend at low speed just until combined. Do not overmix. Add [raisins] chocolate chips and blend into mixture.

Drop by rounded tablespoons onto ungreased cookie sheets, 2 inches apart. Bake for 18-22 minutes or until cookies are light golden brown. Immediately transfer cookies to a cool, flat surface.

Yields 3 dozen.

I believe the lower temperatures and longer baking times really set her recipes apart. I never get a burnt batch, ever.

Oh, and the carbohydrate count = 40 grams for a 2.3 oz cookie

Enjoy!

Olympic Dreams...

2010-02-23T08:00:00.000-08:00

Okay...I'm really going to date myself with this one, but here it goes...
________________________________

It was 1976. Our country's bicentennial year and the Olympics. Like a million other little girls, I wanted to be like Dorothy Hamill, the women's figure skating gold medalist. Wait a minute, I did not want to just be like her...I wanted to be her! In my little girl's mind, I honestly thought I could be the next Dorothy Hamill!

I spent nearly every afternoon at the local ice rink. I registered for lessons. I even bought a used ice skating outfit that looked pretty much like the one Dorothy wore in her gold medal routine. As for the haircut, I didn't go that route, but did ponder it!

It was a great couple years of dreaming...

Eventually, however, other interests popped up for me. Skating became less and less. In fact the ice arena was torn down just a few years later. I don't even know where I could take my kids ice skating locally anymore.

I guess my point here is...I truly believed I could do it. Did my parents believe it too? If they didn't, they sure acted like they did!

I want my kids to dream big. It can be what gets their hearts pumped and motivated. I want all three of them to think anything is possible. Yes, even the Olympics!

I tell my kids often what I think they're good at and that they can do anything if they put their minds to it. But, then I think about diabetes. Deep down inside, I'm really not sure if C can do anything she wants. But, we're certainly trying. Dance. Soccer. Musicals. Softball. Gymnastics. Diabetes creates real challenges. Those things are difficult to do, not impossible...just difficult.

I've watched this past week and a half until my eyes have glazed over. I want to tell C, "look, you could do that if you want!" I'd love to see an infusion site on the back of a figure skater's arm!

The D-Mom Blog

2010-02-16T08:00:00.000-08:00

Introducing...the D-Mom Blog!

Our friend Leighann has taken great care in the design, layout and content of this new and wonderful resource site for parents of type 1 kids. It just launched last month. What an incredible need it fills! How I wished there had been something like this when C was first diagnosed.

It is choc-full of diabetes information...everything from common diabetes terms to helpful hints about eating out. Can't find an answer to a burning question? Email in and ask a D-Mom! Alone, we can feel overwhelmed by our child's diagnosis. I commend Leighann for bringing us together for support, encouragement and strength.

Each Monday, Leighann introduces a D-Mom or D-Dad to the community. Yesterday, she featured us!

I felt honored and privileged to take a spot on her new blog! Thanks again, Leighann!

My New Shoes

2010-02-12T08:00:00.000-08:00

It's Friday. And, this is frivolous.

I got some new shoes.

After seeing them on Sally Field in a commercial recently, I figured that I certainly am not too old to wear them. I love them. My oldest is embarrassed. Mission accomplished.

I love them!

8 Years Ago Today...

2010-02-09T08:00:00.000-08:00

8 years ago today, we became out-numbered.

8 years ago today, I fully expected to meet another red-headed little boy.

8 years ago today, I finally found out what all the hype is, regarding epidurals.

8 years ago today, my husband fainted while watching the needle go into my back.

8 years ago today, I got to witness 2 little boys meeting their sister.

8 years ago today, diabetes was not even a thought.

8 years ago today, I knew our family was complete.

8 years ago today, sweet Claire Olivia was born.

Happy Birthday, Sweetpea!

Oh No, Oprah!

2010-02-05T08:00:00.000-08:00

Do I dare even attempt a post about the Oprah Show on diabetes? I guess I'm still coming to terms with all the emotions that welled up within me while watching it. Yes. I'm going to attempt it.

First of all, this episode needed a warning. I have been a pretty avid fan of hers. And normally when there is a tough topic, she warns us. The images of an amputee's mangled limbs were fairly gruesome. My oldest was sitting with me and it was difficult for me to watch this. And the title, Diabetes: America's Silent Killer...uh, seriously? C was not in the house at the time, but I can imagine how a little kid with diabetes would feel if they happened to hear that on television! Just had to get those two issues off my chest...

The show itself was about type 2 diabetes. That was plain and simple...well, simple if you know anything about diabetes. But, as we all sadly realize, the general public does NOT know the difference. It was never explained clearly. The tiny bit of information shared regarding type 1 was absolute nonsense in my book. It was Oprah who tried to differentiate between the two at a couple times in the beginning of the episode. But that was it for type 1. The show's title should have been called Diabetes: Type 2 Only.

As far as I am aware, Dr. Oz is a heart surgeon. I know Oprah calls him America's Doctor, but really, his expertise lies in cardiology. How difficult would it have been to get an endocrinologist to be on the show. I nominate the famous doctor, Dr. Francine Kaufman. I mean, really, how hard is it to find a type 1 person living a wonderful, healthy life? I know a bunch of them. And then, there's the part of the population that was completely over-looked in this segment...children. I know CHLA alone (Childrens Hospital of Los Angeles) services over 2,000 type 1 kids. As a family, whose lives are affected 24/7 by diabetes...I felt ignored, alone...again.

So, according to the doctor, these four things are the causes of diabetes: 1. excessive belly fat 2. a sedentary lifestyle 3. a family history 4. smoking. I want so badly for him to see a picture of my 8 year old daughter. She has diabetes...She is definitely not over weight. She is quite active. There is no family history. And, as far as we know, she doesn't smoke. What do you think of that, Dr. Oz? Why was type 1 diabetes so utterly left out of the show?

Worse than ignoring the entire type 1 population was the blatent misinformation that was aired. The following were the statements that bothered me most:

How many times did they refer to diabetes being preventable and/or reversible? I lost track. Even fitness/diet expert, Bob Greene chimed in with his statement that diabetes is preventable. Of course he wanted to plug his book, "The Best-Life Guide to Managing Diabetes & Pre-Diabetes."
Dr. Oz stated that diabetes is "almost always reversible."
Bob Greene claimed the key is cider vinegar. It changes the glycemic index of any food. Why has our endo never told us about this?!
Straight from Dr. Oz: "At the end of the day, the amount of insulin you gotta take depends on how bad your diabetes is."

I know that type 2 diabetes can be controlled through oral meds sometimes and that better diet and exercise can, in fact help a type 2 step away from that diagnosis. But, this show was so disheartening to watch. I know that a lot of the DOC folks are with me on this. I feel so deflated as I write this post. Wasn't it just 3 months ago, during "Diabetes Awareness Month" that we were fired up and trying to dispel the myths surrounding diabetes? I wanted to educate people about it, for my daughter's sake. Today, Oprah's show took awareness 10 giant steps back.

I am truly dissappointed in the irresponsibility of airing that show. I love Oprah. She has a platform like no other. Maybe she will surprise us in her final season, hear our cries and actually cover the reality of diabetes.

The only redeeming value from the show is that of Walgreens' generosity. Tomorrow, you can go into any Walgreens pharmacy and get a blood glucose test...for free. Call 1-800-WALGREENS for one near you!

With Age & Experience Comes...

2010-02-04T08:00:00.000-08:00

...something to talk about!

I was truly honored to be asked to speak in front of a group of nurses about diabetes. Yes, me! Public speaking is so much NOT my thing, that when I look back on this, I just have to smile.

A few months back, a friend emailed me and asked me far in advance if I would come down to Orange County (the other OC) and speak to her collegues about diabetes. Specifically, they wanted the perspective of a parent with a diabetic preschooler who had transitioned into elementary school.

Well, I was honored. I was nervous too. But I said "yes" right off the bat.

I wasn't too sure about what I would say. But when the time came, I wrote down a few notes about life with a type 1 toddler in the house and how we approached the beginning of preschool and then the transition to our neighborhood elementary school. I brought with me samples of the diabetes supplies that take residence in one of our kitchen cupboards. I brought several books that are meant to help kids cope with the diagnosis. I brought the book C and I had writtten together before kindergarten started so we could explain diabetes in a 5 year old's terms. I brought our 504 plan. I brought C's favorite doll with a pretend pump pack. I brought a big poster about C that we had made when she was in preschool with all her favorite things in pictures. Basically, even though she wouldn't be there with me, I wanted to present her...all aspects of her, not just her diabetes.

I got to the district office early. I walked in the back door. There must have been 40-50 nurses sitting around tables in a horseshoe shape with the overflow in a few rows of chairs. There was a speaker in the middle of her presentation, talking about learning strategies or something of that sort.

My friend spied me walking in and came back to greet me. We slipped outside to talk for a while. She helped me gather my things from the car. My timeslot would be coming up soon after lunch. I was nervous.

Toward the end of lunch, I began to set up my "stuff." I sat back down and it was time. I was given a nice introduction. I then made my way to the podium. I looked at my notes, took a deep breath and began. I felt flushed and began to sweat. There was a quiver in my voice. "Excuse me," I said, into the microphone. I dropped the microphone down and cleared my throat. I took a sip of water. And while I was doing these things within a matter of seconds, I thought to myself---Why am I feeling so nervous? These people don't know me. I will probably never see them again. What's my problem? And in that brief moment a calm came over me. Here was an incredible opportunity. Diabetes education...to nurses, no less!

I began again. I felt confident. I had something to share. I actually really enjoyed it. I told the group that as nurses, they need to realize that the parents of type 1 students are tired, weary. They are under a lot of stress. Diabetes is difficult. And, this is their child. I went on to talk about different issues when it comes to diabetes and school. I shared our book and got great feedback. There were questions at the end of my talk. And I actually felt knowledgable enough to answer them! It was great. I was able to give a little plug for my pump gear and handed out some flyers too.

As I packed up my things, they thanked me over and over for giving my time and perspective. I seemed to have given them some insight into the needs of type 1 kids as they begin elementary school.

As I drove home I remembered how much I would dread getting up in front of a class to give a speech when I was younger. It was grueling to get an assignment like that. I never felt I had anything to say. And then it dawned on me. Maybe I just needed to live life. Now that I'm older, life is so very full. There is so much to talk about.

Don't Believe Everything You Read

2010-01-28T08:00:00.000-08:00

...or everything you see on television!

I get so frustrated when I read things that are incorrect. Unfortunately, there's a lot of this when it comes to diabetes. I've written letters before. I have friends who have done their part too. I'm tired, though. Instead of writing another letter I wished I could have jumped through the television screen the other day. I wanted so much to set them straight at the Today show.

Natalie Morales was interviewing a fitness expert, Jorge Cruz for a short segment on, you know...getting in shape, staying in shape, shaping up...something like that. The show was playing in the background while I worked. But then they started discussing carbohydrate counts, my ears perked up. I sat and listened for a few minutes and began feeling very antsy. What he was saying was NOT correct. And the sweet little hostess, Ms. Morales, just sat there, nodding her head, saying "right, right." Ug!...It was so not right at all!

This guy was rattling off numbers that did not make sense. After scooping countless servings of ice cream with a measuring cup, I basically know that a serving is anywhere between 15 and 22 grams. But this guy stated how terrible it is that a serving of ice cream is 54 grams. What?? 54 seemed to be the number of choice with this man. Did you know that a cup of chocolate milk, nonfat, is also 54 grams? Well, it's not. It's about 32 grams. I was furious and wanted to jump through the television screen and let him know what would happen if I gave insulin to my little kid for 54 grams of carbs when it definitely isn't 54 grams.

And all the while, the hostess...smiling and nodding, "right, right."

Maybe these shows that are packed with information, just need to back off. If they're going to cover a story, COVER a story. Do the research. Watch what they aire. To them, it may be just filler time. But it matters. At least it matters to me.

A Weekend Without Diabetes (sort of)

2010-01-20T08:00:00.000-08:00

I left for the long weekend with my sister. We headed north to our favorite place...to meet up with my parents and spend some concentrated time with them. No kids. No husbands. No distractions. Oh, and no diabetes.

My parents are getting older (aren't we all?) and we thought it would be perfect timing to meet with them and talk about things like their rental properties and how we can help out with them. Two locations are vacant at this time. They would be showing them to prospective tenants and we could learn.

I made sure the fridge was stocked, laundry done, meds picked up and reminders written down.

I almost forgot but C reminded me to get a birthday present for one of her little friends on Thursday night. C seemed to be the one in the family who had a busy weekend ahead. She was excited to be meeting with her new softaball team on Saturday and going to a birthday party on Sunday.

After making sure everyone was set for the weekend, we left.

I didn't worry...too much. My husband is quite capable. It was a pretty light weekend, activitiy-wise. Kids were healthy. C's numbers had been just fine. And honestly, there was a piece of me, deep-down, that was ready for a little respite from diabetes.

Later that night, when we had settled in, I made my good-night call. I threw each one a kiss through the phone. I got on the phone with the husband.

"Okay hon...have a great time with the folks. Everything's being taken care of here" he said.

"Thanks! I will. Love you..."

"Oh, just to let you know," he said, "C has a bit of a fever. Nothing terrible...100 point something."

"What?"

"And she's been complaining of a sore throat."

Silence.

"Hon? Are you there? She'll be fine. I just gave her some Tylenol."

Big sigh. "I know," I said. "But I wouldn't have left if I had known..."

"I know. But it'll be fine. I'm glad you're there. You needed to go."

"Please watch her numbers..."

Really this was the first illness C has had this entire school year. I couldn't believe it. I felt my neck. It was already in knots. Had I wished he hadn't told me? Yes. Would I have gotten angry if he hadn't told me? Yes. Oh brother.

I kept my phone on that night. I just hoped he'd check her through the night. Sometimes those fever highs are relentless and need more aggessive correction. We had been doing so well on her bg averages. And her next endo appointment is in a few weeks. Argh.

It was a sleepless night. This was not what I had been secretly wanting. That next morning, as I was sipping my coffee and enjoying the view of the bay, I decided something. I was going to release this anxiety, Lord willing. I figured why in the world should I feel this tense? I'm here. She's there. Husband's got it covered. I can't do a blasted thing about her illness right now except to pray, as always.

I looked over at my dear mom and dad. They were genuinely thrilled that my sister and I were there. I smiled at them. All of a sudden, I realized my role that weekend was that of daughter. Not mom. Not nurse. I let it go.

Now and then, throughout the weekend, I'd get a text: 243, corrected and resting...mild fever...not complaining...91,eating dry cereal...267, but coming down. And so it went. Things were fine. The sad part was that C missed out on the fun that she had planned that weekend. But by Monday when I returned home, she was feeling rested and much better. So was I.

A weekend without diabetes? No. Not really. Not ever, really.

My favorite place.

Goldilocks and the 3 Cell Phones

2010-01-13T08:00:00.000-08:00

Well, it happened. All of us got new cell phones for Christmas. Yes, all of us...including the 7 year old.

I know. I've heard all the comments already.

"Wow, she's pretty young to have a phone!"

"I wouldn't dream of giving even my 10 year old a phone!"

"What in the world does a 7 year old need with a phone?!"

I have to say that there is a ton of pressure on parents to provide children with cell phones. And, we put it off until our oldest was in middle school. He began going places, more and more, with friends. We were beginning to drop him off at practices and games. It felt like the right time to give him a phone...for our peace of mind.

Jump back to Christmas...

My cute little pink, breast-cancer-awareness-y flip phone was finished. Literally, 3 days before our contract ran out with the carrier, it died. It would not even stayed charged for 30 minutes. Of course, the husband was out of town. I couldn't believe it. We had been waiting with baited breath for the freedom from this company so that we could start fresh, new phones, new carrier. But I needed a phone right then! How did I ever manage without one. I went w/out for one day. 1 day. It drove me to the brink, people. This was just before Christmas break and I needed every possible moment to do all those crazy last-minute things a parent does w/out kids in tow.

Well, I couldn't stand it...so off to the _ _ & _ store I went.

"Sorry, lady. They don't make batteries for that phone anymore. Can I upgrade you to a new phone and new plan?" In other words, "Can we lock you in with us for another 2 years with lousy service and extremely over-inflated charges?"

"Um, no thank you!" I said. "I just need a phone for like, 2 more days. Anything. Maybe a junkie old one someone just turned in. Anything?"

"Sorry ma'am. All we can do is start you on a new phone with a new plan."

Argh.

I certainly didn't want that. I went home feeling bound to our house phone.

And then, my 12 year old had a brilliant idea. "You can put your old SIM card into my phone, mom."

"Awesome! Thank you dear heart!"

And then he realized he was out a phone until the next week or maybe beyond. Such a sweet boy!

Anyway, where am I going with this post?? O yeah...a 7 year old with a phone...

So, after getting through that horrendous phone-obsessed weekend, the husband and I talked about our options. We had really wanted to replace our phones (the 3 we had) at Christmas time...as Christmas gifts. We wanted to give middle C one as well. There are many times I just wished he had one. You know, sports practices, off with friends.

So we decided to get 4 new phones, whole new carrier. And then, I began thinking again (dangerous, I know). The kid who really needs one is C! She too, is beginning to participate in activities that are difficult for us to be at every single minute. And I need to feel she can reach us whenever the need arises. With diabetes, we are finding it increasingly difficult to make certain all of our bases are covered with the different adults who may be in charge of her supervision. Of all places, Sunday School has given us several concerns. I just can't trust that everyone will consider a blood glucose reading of 47 as important...something that happened a couple months ago. I feel I can trust C more...to at least call me if she has that option.

She really has shown great responsibility for her new phone. She knows it's not a toy. It stays in her bag. The only numbers in her contact list are family members. I think our new motto is going to be "test, treat & text."

So, the result is this. We all got phones for Christmas. All of us. Even the 7 year old. There are limits. And there are restrictions. But now I'm able to reach all my kids and they're able to reach me.

I suppose people will think what they will. But they don't know my daughter. They don't know our life. And, unfortunately, most don't know about diabetes. If having access to her phone makes even one low less scary for her (and me) then that 5th phone in our family is worth it...not only the money, but all the raised eyebrows and questions.

Goldilocks and the phones

Batter Up!

2010-01-07T08:00:00.000-08:00

So, C had softball tryouts on Monday night. Yes. 7 year olds...trying out for a sport.

Now, both the boys are deep into baseball. Our family lives it...breathes it. However, I guess it never dawned on any of us that, though, C is constantly there, at all the games (since life began for her)...she never really has played the game. Hmmm...

Just after dinner, they began to practice. Throwing, pitching, batting, catching. A crash course for sure! I was nervous for her. I didn't want her to feel the pressure. So, we hopped in the car and headed for the field...all of us, brothers included.

While I checked in at the registration table, Big C took her to the practice field to give her a few tips. (This warmed my heart.) It would be quite a wait for C's group to be called. Group #1 was finished. Group #2 was being rounded up. C would be in Group #4. So, we chatted with other parents. Middle C met up with a friend. We watched as the other girls were "trying out."

Group #2 was finished...on to #3.

I began to fidget. C needs to get checked, I thought. I tried getting her attention on the practice field. Big C was still giving her some catching advice. I tried waving to him. They're absorbed in practice. Okay, it can wait.

Group #3 was half way through. She's got to be tested, I thought. And though I tried setting her up well with the dinner bolus, you never can tell what surprises diabetes will hold. Dad was now out on the practice field as well. I didn't want to make a scene...so I whipped out my new fancy phone and texted him. "C needs to test!"...no response. I texted Big C. "Bring C over so she can test..." Neither one reached for their phones.

"Group 4!" a lady called out. Finally, there they all came, in from the field.

C seemed fine enough. She grabbed a helmet and started over to the group. "Hold on," I said. "You've got to test." 5...4...3...2...1...54! Darn it. Juice box. She scooped up all her equipment and headed to the dugout. I motioned for Dad to follow with her kit. "Let someone know she's low," I said. They would have to skip over her until her number comes up.

I sighed. Apparently, I sighed heavily. An older lady, standing nearby looked at me and said, "Oh, we have some diabetes in our family too. It's just great how the kids can take care of it themselves and it's no big deal, is it?!"

What? What???! "It's a bummer," I said. "It's a huge deal." I forced a smile. Then I got up and walked away. I guess I wasn't in the mood for a new year's resolution.
________________________________________

Oh, C's tryout? She hit the ball 2 out of 3 times. She never caught it, but she threw it hard!...Like an All-Star!!

Some Diabetes New Year Resolutions

2010-01-05T08:00:00.000-08:00

Not that I want to set ourselves up for failure...but...

Here are some diabetes-related resolutions for 2010 (by the way, I like saying "twenty-ten"...you?):

We will change sites every 3 days...not 4, not 5, not...you get the picture!
We will definitely order Minimed supplies when ours run down to 1 month left so that we don't need to frantically drive to Minimed's home in Northridge. : )
We will keep a supply of diet 7 Up and regular 7 Up, hidden, away, so that it's there for those unexpected sick days.
We will communicate w/C's endo in more timely ways when her numbers start to creep up...like today!
We will step, further, out of our comfort bubble to make sure those around us learn about diabetes (at appropriate times, of course!)
We will use our many sets of measuring cups more!

Those don't seem too lofty of goals, do they? What are you hoping to do/accomplish this new year?

Happy 2010 to you all!!!

The End of 2009

2009-12-31T19:52:00.000-08:00

So, taking a cue from my blogging friends...I'm reviewing the year at my pump gear, with a twist. Since 2009 is ending in just a few hours, here are the ending lines of some posts from last year...

We're back in the blogosphere.
Maybe I'm the only one who notices the bulge from her insulin pump just beneath her skirt.
God did.
I just really miss my Trader Joe's french toast.
Let's go to the snackbar!
"Hey, if I were in charge of casting," I told her, "you'd get the job, for sure."
"Wow! I got to see a famous doctor!"
I mean a kid can only have so much sugar-free jell-o.
Money has no expiration date.
Support is just one mouse click away.
I guess diabetes liked Sea World just as much as we did.
Maybe we should have just gone back another time.
Gee, diabetes, you're so subtle.
I love the Fourth of July.
Oh, the possibilities!
Instant unspoken bond...whenever I meet another D-mom.
I think it's the case of the incredible shrinking carbs!
What a sleep-over.
Thankful for...the Lord...for everything.
Wow, what a perspective!
So thankful to have received the injections.
And, like I said, we felt hope.

Now...I'm going to go get in my jammies and watch the ball drop with the kids! I'm looking forward to 2010! Will we be saying "two thousand ten" or "twenty ten?" I guess we'll find out tomorrow...

Cheers to you all!

Happy Dia-versary!

2009-12-29T19:30:00.000-08:00

Yes, that's right. HAPPY Dia-versary! It's been 6 years for us. 6 years of finger pokes. 6 years of insurance battles. 6 years of 12 midnight and 3 am. 6 years of insulin, tears and fears...6 years of diabetes. And, yes, today is a happy day.

Our family is choosing to celebrate this day, December 29th, C's diagnosis day. We are not, by any means, celebrating diabetes. Rather, we are celebrating LIFE, where diabetes has taken our family and the strength C has gained, because of this disease. It was 6 years ago today that began this incredible journey for her and our family. It is bittersweet to me, for sure. I am so happy that God made me stay that long, awful night in the ER. I am happy that we actually got the disturbing, confusing diagnosis. Because that means, diabetes did not win out.

My eyes are welling up as I type. But, really, I am happy. My daughter is thriving. Our family is growing. And we are blessed beyond measure...despite diabetes. No. It will not win out. We will work hard to keep things in check. We will lean on friends and family who, may not fully understand our situation, but love us tremendously. We will continue to learn about new advances for diabetes management. We will hope, still, for a cure. We will continue to lend and gather support from our online friends who know exactly what we're up against. This is a great day.

So...we're off to go...bowling!...C's choice. We may even get some ice cream too!

Happy Dia-versary C! We love you...

(Yes...got the ice cream! And 2 hours later?...only 226!)

Wordless Wednesday...

2009-12-09T08:00:00.000-08:00

A Dill Review

2009-12-07T08:00:00.000-08:00

Back in the summer, there was a post about C being invited to a birthday party and the onslaught of diabetes talk that came with it. I wrote about the "Pickle Pop lady" and how she was so convinced that they are perfect for diabetics...my daughter included.

Well, it just so happens that the owner of Bob's Pickle Pops read my post and contacted me via Twitter! Really!! It floored me. He offered to send some pops for my family to try and see what we think. Through our email discussion, he seemed very thoughtful and generous. I took him up on his offer. In just a few days, the pops arrived.

Now, I'm a friend of the dill pickle...now and then. But it's certainly not my favorite treat. I know there's practically no carbs involved, but the salt content is enough to knock your socks off. And it's no different in the Pickle Pops. They are simply frozen, crushed, dill pickles (like an ice pop, if you will). One taste was all I needed to know...this treat was not meant for me.

Now, my husband? He ate one. I mean the whole thing. I said "Wow, you must like it?"

"No, not really," he told me. I should have known...he will eat just about anything.

I offered one to C. Her response was nearly the same as mine. Big C wanted nothing to do with them. I couldn't get him to even try one. Then there was middle C. He was my true taste tester. I will let the following photo tell of his response. It's pretty clear.

Unfortunately, they were a "no-go" for our entire household. Sorry Bob! It's an interesting and amusing concept. However, in my opinion, people who are looking for a low calorie snack (diabetes, or not), sometimes have other medical issues which could include high blood pressure, heart conditions, etc....and I don't think the high sodium content is a healthy option.

Infusion Site Woes

2009-12-04T08:00:00.000-08:00

I couldn't let Wednesday's picture go without explanation.

Now, we've had infusion site issues in the past. If C is running high with no other explanation, it's likely that the infusion site is the culprit...or air bubbles...or a blockage of some sort...or old insulin...or, well, it's never really likely anything for sure. We just start deducting and trying to figure it out. And, sometimes, yes, when an old set is pulled out, we sometimes find the catheter like Wednesday's picture...bent, blocked, maybe just past its prime, so to speak.

But this was different. It was not an old site at all. I ripped it out nearly as fast as the QuickSerter punched it in. As soon as that little spring-loaded device did it's job, C screamed at the top of her lungs, "It hurts...it hurts!!" She was wriggling like a worm. I usually ask "Does it hurt enough to take out and try again?" And most times it will all be fine. But this was quite a different reaction. So, out it came. I looked at it. That's bizarre, I thought.

It must have hit muscle. Or C must have tensed up. I don't know. But I hated that it happened. I hate that every 3 days, there is a high probability that I will hurt my daughter. I sat and stroked her long, pretty hair. "I'm so sorry Sweetheart. I don't want to hurt you, C." Her tears cleared up quickly. I prepped her once more.

"Relax, Honey. Here we go..."

"Oh," she said. "That one didn't even hurt at all!"

Sigh.

Wordless Wednesday...

2009-12-02T08:00:00.000-08:00

That's a Wrap...

2009-11-30T08:00:00.000-08:00

This month has been filled with diabetes awareness events, conversation, celebration and myth busters. Now that it's winding down, I thought I'd give a wrap up of 30 myth-busting awareness statements. These are the things I most want the world to know about diabetes...because, really, without awareness and knowledge, our dream of a cure will not be realized. There is still far too much mystery about it, at least in the general public.

Know the warning signs of diabetes and tell others...it could save a life!...extreme thirst, frequent urination, fatigue, weight loss and more...go to worlddiabetesday.org to learn more.
No one gets diabetes from eating too much sugar.
Sugar can actually save a diabetic's life.
There are several types of diabetes: type 1, 1.5 (LADA), type 2, gestational and several other rarer forms.
The onset of type 1 diabetes sometimes masks itself as flu...if your child's flu symptoms do not add up, ask the pediatrician for a blood glucose test and don't take no for an answer.
All types of diabetes are bad.
Making Sense of Diabetes is a great educational video compiled by the Diabetes Hands Foundation with the help of many friends from the diabetes online community.
There are theories, but not even the experts know why a person gets T1 diabetes...there's nothing that was eaten, done or said that gave them that disease.
People w/diabetes can and do enjoy just about any food that people w/out diabetes can enjoy...that means cupcakes too!
November 14th is World Diabetes Day...the birthday of Frederick Banting, one of the men who discovered insulin.
Knowledge is power...and power brings change...we need a cure.
Diabetes is not contagious.
W/diabetes, the total carbohydrate count on food (not just sugar) must be balanced w/insulin, which is on a very individual basis.
Kids w/type 1 diabetes grow up to be adults w/type 1 diabetes...they will not grow out of it...we need a cure.
Type 1 diabetes is sometimes termed juvenile diabetes. However, it can be diagnosed at any age.
The main difference between type 1 and type 2 diabetes: In type 1 diabetes, the pancreas ceases to produce insulin, a hormone which enables the body to convert food into energy...In type 2, the pancreas does not produce enough insulin or the cells ignore the insulin that is produced...sure wish there were different names for them.
Insulin is not a cure.
For insulin-dependant diabetes, there are several ways to deliver insulin...syringe (several times a day), insulin pen (still a needle) or...insulin pump, which goes into the person's fatty tissue via a catheter that is changed every few days (still with a big "needle" poke)...did I miss any?
This is not an easy thing to do -- People w/diabetes strive for blood sugar readings anywhere between 70-120...(some people's range numbers may differ slightly)...It is a constant balancing routine that requires diligence and thought.
The term hypoglycemia refers to a blood sugar reading below 70...symptoms vary among people...but some are shakiness, dizziness, sweating, pale color, difficulty communicating, sudden behavior change like becoming weepy for no apparent reason. Hypoglycemic episodes (insulin reactions) MUST be remedied immediately w/a source of fast-acting sugar or seizure, coma and death will occur.
Diabetes is an expensive disease.
The term hyperglycemia refers to a blood sugar reading that is too high...It is the main cause of complications...Symptoms include frequent urination, increased thirst...If undetected, it can lead to ketoacidosis (diabetic coma) and can include shortness of breath, fruity-smelling breath, nausea/vomitting and extreme dry mouth...If undiagnosed, it can lead to death.
Sometimes diabetes isn't manageable at all.
Contrary to popular belief, yes, a type 1 person can eat that.
Exercise can lower a blood glucose reading...However, if the reading is extremely high (over 240), the exercise can cause it to go even higher...This varies from individual to individual...crazy diabetes!
A personal favorite...having a type 1 daughter and loving the movie Steel Magnolias...type 1 women can have wonderful, healthy pregnancies when supported by a great medical team, with love and diligence...and, if you don't know the reference to Steel Magnolias, all I can say is "why have you never seen that movie?!"...the first thing the doc who diagnosed C told me was, don't think about Steel Magnolias!
People with diabetes can do anything...it just takes a more preparation. Once, we heard an inspirational speaker talk about his ascent to Mt. Everest...with type 1 diabetes!
Nighttime rest for parents of a type 1 forever changes with that diagnosis.
There are countless variables when it comes to managing diabetes from hormonal changes to illness to stress...and everything in between.
Diabetes is 24/7...every minute of every day...there is no break or vacation from it...until...there's a cure.

Whew! In the beginning of the month I thought that it might become difficult to come up with statements. Sadly, I could continue for a while yet. However, I think I'll leave it at the above 30 issues until next November!

Thankful for...

2009-11-25T08:00:00.000-08:00

the husband who works super hard so I can stay home and take care of our kids and learn this new thing called business
big C who, even though frustrates me to no end at times, also makes me just as proud
middle C who continually keeps the comedy coming
C who blesses me daily by simply being my daughter
friends who understand all about me and love me anyway
home, though small and modest, is warm and filled with life
church family, who has welcomed us with open arms
our city that is filled with home-town ideals
the diabetes online community for helping us feel not so alone
teachers who not only teach my kids, but care about them as well
our baseball family who genuinely loves the game
the U.S.A. where we feel free and blessed
health, though not perfect, has brought me through another year
sisters who have grown to be more like friends over the years
nieces and nephews for filling the future with great promise
sisters and brothers in-law who actually seem like my sisters and brothers
jobs that continue to put money in our pockets
Lily, our dog, for thinking I'm the best person in the world, even when I'm in a very grumpy mood.
my mom and dad for just being my mom and dad...their quiet generosity is such a loud example.
the Lord...for everything

Happy Thanksgiving everyone!

The Cost of Diabetes

2009-11-23T08:00:00.000-08:00

"The national cost of diabetes in the U.S. in 2007 exceeds $174 billion." This is taken from the American Diabetes Association website. That was the most recent statistic to be found. I am certain last year's calculations are higher just as 2009's amount will be higher still. But $174 billion? That's overwhelming right there.

I don't exactly know what that amount includes. Doctor fees? Surgeries from complications? Medication? Co-pays? I don't know. But I thought I would do a little research of what diabetes actually costs our family on a monthly basis and beyond. Without insurance, it would be nearly impossible.

100 lancets: $ 13.99

300 test strips $356.97

2 vials of insulin $227.98

10 resevoirs: $ 33.00

10 infusion sets: $116.00

total monthly expense: $747.94

The following items are not monthly, but still an expense.

alcohol wipes:              $   3.00
iv preps:                      $ 12.00
glucagon kit:                $117.99
emla creme:                 $ 63.99
glucose tabs                 $ 5.00

                           total: $201.98

The following items last a while but need to be replaced once in a while.

QuickSerter:                $ 24.95
meter                           $ 69.00

                          total: $ 93.95

Finally, the pump itself...this expense is replaced every 4 years.

Minimed insulin pump:    approximately $6,000.00

Thank God for insurance! Now, don't get me wrong. We've had more than our fair share of insurance woes. Like the time they wouldn't believe that we actually really use 300 test strips per month. And sometimes they've "forgotten" that we paid a copay and bill us again. Or, there is the occasional mystery bill that comes and puts us on the brink of collections for no apparent reason. However, they do pick up most of these charges. Yet, glancing over this list, if we simply paid an average $20 copay for each item, diabetes is not a cheap disease.

Diabetes? Expensive. Keeping our daughter alive and healthy in spite of diabetes? Priceless.

Introducing...Captain Insulin!

2009-11-18T08:00:00.000-08:00

Captain Insulin...a superhero, for sure!

This November, during Diabetes Awareness Month, I have had the pleasure of having a couple different D moms guest post here. Today, I have another special treat. I am so excited and feel priveleged to be able to share the perspective of a teenager, living with type 1 diabetes since the age of 5. He is now a high school senior, very involved in sports and high school activities. Recently, his thoughts have been turned to college. Applications have been filled out and submitted. What follows is Michael's personal statement as written by him...part of his college application process. I am happy to introduce Michael, son to Melinda (@notsostilllifes) whose own guest post showed a mom's perspective on her son's experiences living with type 1. Now, we get to hear from Michael!

(Oh, and Captain Insulin? Not too long ago, Mom shared Michael's Halloween costume...Captain Insulin! It's awesome...so I had to include it!)
____________________________

On June 30, 1997, when I was only five years old, I was diagnosed with Type1 Insulin Dependent Diabetes. At first, I was devastated. It seemed like the worst thing that could ever happen to someone. My days, once carefree, were now dominated by injections, finger pricks, and pain. Food, instead of being something that I could enjoy, was now a chore because I was forced to count carbohydrates before I ate, and inject insulin accordingly. I felt sorry for myself. None of my peers could ever imagine what I went through on a daily basis. It didn't seem fair.

Within a few years, however, I developed a completely new mindset about diabetes. Instead of feeling sorry for myself, I now took it as a challenge that was presented to me, to see what kind of a person I really was. I became determined to beat diabetes by always staying in control of it. I was not going to let diabetes define who I was, but instead use it to show myself what I could become.
Over the years, I have adapted to life with diabetes. The injections and finger pricks that used to haunt my thoughts are now just a part of everyday life. Although I think about every bite of food that I eat, these thoughts are in the back of my mind, creating room for other important thoughts that average teenagers have. Yes, I have diabetes, but that does not stop me from doing everything that my peers do. I play competitive sports year-round, go to the beach, have wonderful friends, and keep my grades up in school.

I see now that diabetes has been the catalyst to make me work harder at everything I do. What once limited me, or so I thought, has actually made me stronger. Diabetes has made me tough, mentally as well as physically. It has made me really appreciate hard work and what it takes to be successful. Diabetes has also made me compassionate. It has made me want to reach out to those meeting life's challenges head to head, just as I did, and give them love and support. For example, last summer I worked as a coach at a soccer camp, and three diabetic children attended one of my sessions. Soccer camp was the very first place their parents had left them alone, and felt comfortable enough to do so, because I was there to take care of them.

I am very aware of the medical complications that I may face later in life, regardless of how well I take care of myself, but this does not stop me from doing everything in my power to stay in control of my diabetes. I thought diabetes was going to limit me, but I prove everyday that it doesn't. I took a challenge many years ago, and I'm going to see it through until the end, because that's the person diabetes has helped me to become.
____________________________

Michael, that is quite the statement! Thank you for letting us post this. Wow, what a great perspective...one I hope my own daughter will have as she struggles yet grows strong because of type 1. Thank you for that inspiration for type 1 kids everywhere...and for moms everywhere too!

Is it any wonder after reading Melinda's post, that she would raise a young man such as this? Thank you, Melinda!

A Circle of Blue

2009-11-16T08:00:00.000-08:00

Yes, the blue cupcakes!

It was a beautiful day on Saturday. Yes, the weather was near perfect here in Southern California. Yes, C's soccer team won their last game. Yes, big C's baseball team had an extraordinary first day of their tournament. But there was something else that made it a great day.

There was an energy that was being spread, across the globe, really. World Diabetes Day was here! The big build-up to the Big Blue Test was being felt via Twitter, Facebook, YouTube, news channels, even a mention on a radio show. We felt connected. We felt so amazingly different than during those first couple years after C's diagnosis. We felt understood. We felt encouraged by friends we've never even met face to face...yet. We felt compelled to reach out to others. We felt hope.

We participated in the Big Blue Test. We posted C's numbers. They weren't great...188 and 192 after exercise. I wanted different numbers! But as I posted them, I thought, well, that just goes to show the inexplainable when it comes to diabetes!

We baked our blue cupcakes. We enjoyed them after snapping a few pictures with them in the shape of the World Diabetes Day circle. We bolused a guess for 30 grams. C ended up at 212 a couple hours later, but we corrected and went on with our beautiful day. We painted our nails blue. And, Big C really wanted to join in, but Dad protested.

And while huge monuments were being lit up in blue across the world, friends all over the place were doing all sorts of creative things to bring diabetes to light. There was a collage. Tatoos. Poems. Beautiful photography. Blue Christmas lights being strung. This year's best diabetic duo SugaSheen putting Beyonce to shame! It was amazing. We came up with some other ideas that we're tucking away for next year. We had fun!

And, like I said, we felt...hope.

The BIG Blue Test

2009-11-13T08:00:00.000-08:00

The BIG Blue Test is almost here!!! And, in case you don't know what that means, I thought I'd give a rundown. However, I can't say it any better than this guy...Manny Hernandez (founder of TuDiabetes, a diabetes online community). I borrowed the following from him. And I know he doesn't mind...Let's do this thing!

November 14 is World Diabetes Day. On that day, at 14:00 hours (local time), thousands of people with diabetes will test their blood sugar, do 14 minutes of exercise, test again and share their results on TuDiabetes or on Twitter.

The event is called The Big Blue Test because blue is the color associated with World Diabetes Day. It is based on a test-in activity that took place July 14, where more than a thousand people with diabetes tested their blood sugar at the same time and shared their results online. This time, the activity incorporates 14 minutes of physical activity to reinforce the importance of exercise.

Participating in this event to raise diabetes awareness on November 14 is easy:

1. At 2 pm (your local time), test your blood sugar.

2. Run, jog, walk the dog or do anything you’d normally do as part of your exercise routine for 14 minutes.

3. Test your blood sugar again.

4. If you are a member of TuDiabetes click on the home page banner and share your readings and what exercise you did between them. If you have a camera, you can also add a photo of your reading(s) or you exercising.

5. If you have a Twitter account, post your readings on Twitter (use the #bigblue hashtag) and link back to: http://bigbluetest.org.

We hope to see most readings posted at 14 hours (2 pm) local time, on November 14. If you are early or late, it’s OK.

What really matters is that you test your blood sugar often and that you exercise regularly. If you don’t have diabetes, you can still take The Big Blue Test. Regardless, tell others to test, exercise and share on November 14.

IMPORTANT:

If due to disability or medical advice you cannot exercise, naturally we don't expect you to do anything that will put you or your health at risk. We'd love you to participate entering your blood sugar readings.

THINK BLUE!

2009-11-11T08:00:00.000-08:00

Do you think World Diabetes Day can borrow this slogan, Dodgers?

We had a great day at the JDRF Walk at Dodgers Stadium last Sunday!

We were invited to walk with team "Beat the Betes," headed up by a family we've been friends with for several years now. We know them through Little League Baseball. The father has coached our oldest son and his own youngest son for several years now on a travel team. So, the love of baseball, of course is a common denominator for both families. But, there is another commonality. Their oldest son was diagnosed with type 1 diabetes 3 years ago at the age of 15. Both C and he started out with the same endocrinologist. He quickly moved from injections to an insulin pump...just like C. We've had lots of diabetes conversations with them. But, I think, the great thing is that there's a lot more to their son than his diabetes. So not every conversation between our families mentions it. We talk lots of baseball. We hear of their oldest son's water polo experiences and plans for college next year. Type 1 has not been given permission to hold this kid back!

So, on Sunday, we felt honored to be included on his team. C's name was included on the team's shirts. It could have been all about him that day, but he gladly included us. The team was invited back to a relative's house after the walk for a wonderful meal and time just to relax. C had an excellent time talking with all the teenage girls and hanging out on the trampoline with them.

It was a special day. You can see the rest of the pictures on our Facebook page: http://tinyurl.com/ygel3ef

Oh, a little sidenote: Sugar Ray Leonard cut the ribbon at the beginning of the walk. And while wandering around, my husband and 2 sons went right up to his limo and shook his hand. (No camera, darn.)

Time to Wait (D-Blog Day 2009)

2009-11-09T08:00:00.000-08:00

It's D-Blog Day...and I feel priveleged to bring you this post today! I get to introduce another special D Mom! A while ago, Dina (@DinaMullins) shared a song she had written called Time to Wait. There is an incredible story that goes along with this song. You see, Dina is the mother of Benjamin (5 years old)...just diagnosed with diabetes in July of this year. The intriguing part is that she wrote this song before his diagnosis. She wrote it while thinking about a family friend who had diabetes...someone she knew while growing up as a young child. Some would think, coincidence. But I don't think Dina sees it that way!
_________________________

Time To Wait
By Dina Mullins

Sometimes I feel so low
I don’t know which way to go
Every time I turn around
Seems I’m headed face-first towards the ground
They search for cures, but there not there
I wait for answers to my prayers
How much longer will I have to wait?
Do I have time to wait?

And I wait
For them to find the reason why
And I wait
Will I have to say goodbye?
Will the answers come in time for me to stay?
Oh, how I pray, for time to wait

Every day I try to lift my head up high
I see the look in other people’s eyes
Don’t pity me
Oh, can’t you see, that I still have my dignity
I’m just like you
I love and laugh and I have hope and dreams
And sometimes it seems
That I have time to wait

And I wait
For them to find the reason why
And I wait
Will I have to say goodbye?
Will the answers come in time for me to stay?
Oh, how I pray, for time to wait

Time to wait
I’ve got a life I want to live
Time to wait
I’ve got so much love I want to give
Time to wait
There’s so many things that I still have to say
Just one more day?
Time to wait

And I wait
For them to find the reason why
And I wait
Will I have to say goodbye?
Will the answers come in time for me to stay?
Oh, how I pray, for time to wait

Dear God, I pray… for time to wait

…time …to….wait

…time…to…wait
_________________________

Dina, thank you for sharing your creative and touching song with us! You can read more from Dina at her new blog: RockReality...oh, and hey!...It's Dina's birthday today! Happy Birthday!!

Time to Wait is property of Dina Mullins. It is a violation of copyright law to reproduce it in any manner without her written consent. So don't do it!

This is a cool logo, don't you think?...thanks to Chris at The Big D Blog.

Guest Post from a Special D Mom!

2009-11-06T08:00:00.000-08:00

When a diagnosis of diabetes is given to a family, it can be a lonely road. The statistics of diabetes are staggering. However, only a small percentage of diagnoses are type 1. When C was first diagnosed, we knew just one girl who was type 1...only an aquaintance at the time. And, though so many children have type 1, they are not all in one place. So, yeah, we felt alone.

At first, I searched the internet, reading article after article about diabetes. Most were strictly factual. Then I came across organizations such as the JDRF...proof that there are a whole lot of families out there, just like us! When C began using an insulin pump, there was a whole new subject to research. Enter the DOC. And by DOC, I mean the "diabetes online community." And, that's when I found Kerri @sixuntilme...a young woman, living a full and happy life with diabetes. Her writing inspired me (and she's funny!) Her blog pointed to tons of other D bloggers. It opened more and more windows for us to learn about this thing called diabetes. Last but not least came Twitter. It's strange. But some people roll their eyes when I mention Twitter. Really, it has become invaluable for me. These people provide encouragement, a venting station, a resource for learning.

I am so happy to introduce a guest-poster today. A special D mom I've "met," Melinda (@notsostilllifes), has graciously written about her son, who is now a senior in high school, diagnosed at the age of 5. So, she's "been there, done that." And I have learned a ton from her. I hope you enjoy getting to know her a bit too! (An interesting sidenote about Melinda?...She paints beatiful watercolor paintings! You can find them on Etsy.)

_________________________________________

On June 30th, 1997 my then 5-year-old son, Michael, was diagnosed with Type 1 Diabetes. I suspected something was up with him before the diagnosis. He was thirstier, and using the bathroom more often than usual. Then, he wet the bed 2 nights in a row. Not just a little wet. Wet from neck to ankles wet. He had never wet the bed before. I had a book I used to look up symptoms and it said "Bed wetting in a previously trained child" was a symptom of diabetes. We headed to the pediatrician, but I already knew the diagnosis. She looked at him, and said that it would be highly unusual for him to have diabetes because he looked so well, hadn't lost a pound, and had had his Kindergarten check up in April and was fine then, but to be prudent, she would test his urine. I saw that strip poised over the cup, and knew that with that dip our lives would change forever. So began the roller coaster ride of living with diabetes.

Six weeks after he was diagnosed, we packed the car with his two brothers (Daniel was 8, and Dylan was 3) and headed to Bearskin Meadows Family Camp. There, we were tossed a lifeline. We met wonderful young adults with Type 1, who were happy, healthy and well adjusted. I realized that Michael could grow up and be like them. We were taught to take the judgment words out of blood sugar readings. They were High, Low And Target, not Good or Bad. You either needed insulin, food, or nothing. Food wasn't good or bad either. You just needed to carb count and cover. We were also told to let Michael be a kid first, and a diabetic second. Camp was such a safe haven.

12 years later, Michael is a healthy, happy well-adjusted 17 year old with diabetes. Has it always been easy? No. At 14, he and his older brother were at a sleep away camp about 35 miles from home at Santa Clara University, staying in dorms. It was a big step for us, but he was ready for it. The phone rang at 1 am about 3 days into camp. It was Daniel. "Mom, Michael's having a seizure and I can't wake him up". Michael had not cut back enough on his insulin to make up for 12 hours of basketball for the past 3 days. Daniel had to call 911, and get paramedics to the dorms. He handled it like a champion. Michael remembers "waking up" on the gurney having the paramedics asking him questions he knew he should be able to answer, but couldn't. Scary? Yes. Learning opportunity? Absolutely.

I can't even believe that this time next year he will be in college. We don't yet know where. Would I like to keep him home? Yes. But I know I can't. We have raised him with wings, and he is getting ready to fly. He wants to play college volleyball (and soccer too) and major in Marine Biology. He wants to live in the dorms, and have the college experience. I am so proud of him. I know he will be successful, diabetes and all. I know that I can let him go, but it won't be easy. I used to say that the hardest thing I'd ever done was learning to poke a needle into my little guy. I'm anticipating, however, that saying goodbye and driving away from wherever he chooses for college is going to be even harder. I guess it's just another one of the hills and dips on the roller coaster, and we will still get to enjoy the ride.
__________________________________________

Thank you, Melinda!!

Once, Twice, 3 Times a Flu Shot

2009-11-04T08:00:00.000-08:00

I can thankfully say all 3 of my kids received the H1N1 vaccination. It only took going down to the massive clinic 3 times (okay, really 5, but 2 times don't count!)

We had already received our seasonal flu shots. And, I had been calling and asking both the pediatrician office and CHLA about availability since mid-August. Finally these free clinics began happening last week. I know there's been lots of talk, many articles written, advice from experts, opinions from others---I took it all in and made the decision to get my kids the shot. I know it's new. I know some people aren't comfortable with that. Hey, neither am I! However, between C's type 1 diabetes and middle C's recent asthma issues (and my affair with breast cancer,chemo included) I was even more uncomfortable in taking the risk of swine flu.

So C and middle C and I went down to get ours last week. I had driven by the mass of people earlier that day thinking I would just run in and get mine but decided better of the 3 or 4 hours of my time it would take (once). The kids had a shortened day so we all went back after school and the wait was only about an hour (twice). Middle C would not be getting the shot that day because of a pesky little cough that had followed 2 days of fever the weekend before (darn). The workers had it pretty well managed but when we got up to the front of the line, they were really combing through for high risk people. They were actually turning people away. I felt badly for these people. But, when we were all deemed "high risk," I was grateful we got through.

Never a fun thing to get an injection. And all the diabetes stuff she has to deal with does not make it any easier on her, but C was a trooper. Only a couple tears. After she was finished, she held my hand while the nurse gave me my shot...

So fast-forward to this week...

I was bound and determined to get the boys vaccinated too. My husband would have to fend for himself. So yesterday was another free clinic time at the same location. I thought I would out-smart the system and take the boys first thing in the morning and get them back to school, with most of the day spared. We dropped C off at school and made our way over to the clinic (3rd time). We got out of the car and headed for the end of the line. Where was it? We walked and walked. People had umbrellas, chairs, bags of food! Walked and walked. Still couldn't see the end of the line....Ackkk. We decided that after school might be a better option. So back to school.

When C and middle C got out for the day (early day, again!) we made our way back to the clinic (4th time). No line at all. We went in without a hitch. The lady at the first table looked up. "Back again?" she asked me. Out of all the people in there, she had helped us the previous week! I told her we'd be back again in a couple hours for my oldest. The workers told me that the injections were very limited and when they run out, they run out. Ug.

Two hours later, we picked up big C and went right back (5 times). Not a huge crowd. But soon, the line became long behind us. We could feel the agitation in the crowd. The news was being spread...no more injections. The remainder of people waiting could still get the nasal mist. But there were no more injections. Okay, I had made this day revolve around getting all my kids vaccinated and I didn't want to go home without that task done. I talked to the first screener and explained about our high-risk. All of us had been vaccinated, except big C. Just one more. Several medical people had told us that no one in the family should be getting the nasal mist with the live virus. A nurse, who seemed a bit more in-charge, overheard me. She looked at me. I must have had quite the defeated look on my face. She said, "Hold on, hold on, don't worry. Let me see what I can do..."

In the meantime, I told our scenario to the next screener and then the next. Each time, they tried to direct us to the nasal mist line. Finally, the in-charge nurse came back and whisked us away to another table. An injection had been found!! I was so grateful. "Thank you," I said.

Strange to have more than half our family listed in the high-risk group. So thankful to have received the injections.

Diabetes Awareness Month...It's On!

2009-11-01T08:00:00.000-08:00

And so begins November, diabetes awareness month. There's so much going on! Where to start? Here's a few ideas to stir the diabetes advocate in all of us.

Well, how about we start simply by bringing attention to it. Have you put that little blue circle on your twitter avatar yet? How about your facebook picture? That's a simple way to draw out conversation about it. Then, friends and family may ask, "what does that little blue circle mean?"

Take those teachable moments this month and do something with them. Instead of smiling and nodding, really explain why you're testing your or your child's blood. When a person mentions your "beeper," actually tell them it's an insulin pump that delivers insulin to your body...and...not just to keep you healthy, but to keep you alive. Explain to someone who thinks diabetes means staying away from sugar, that, in all seriousness, sugar is extremely necessary in diabetes. (You know, I'm writing all these suggestions down because, really, I need to do these things too!)

Sign a petition! Sign the Google Doodle petition. It's asking Google to light their homepage doodle in blue to raise awareness for World Diabetes Day (November 14th).

So much more going on. Take a look at the World Diabetes Day website.

Join diabetes social site like TuDiabetes or T1P (Type 1 Parents).

On World Diabetes Day (November 14th) there will be a whole diabetes community blood glucose check at 2:00 pm eastern time. Check and post the number on your twitter account, facebook, blog or website.

And, don't forget to wear blue!

If we take even these small steps together, we can help raise awareness.

This Year on Halloween

2009-10-30T08:00:00.000-07:00

This year on Halloween big C will be playing baseball in a travel tournament. (Arghhh.)

This year on Halloween the kids will carve their pumpkins on their own but leave the last of the guts scraping to Dad.

This year on Halloween we will put the old baby monitor inside a scary jack o' lantern.

This year on Halloween I will not give candy out to adults posing as children.

This year on Halloween C will dress up like a black cat.

This year on Halloween the dog will go crazy over all the door bell ringing.

This year on Halloween we will explain to several people that it's okay that C goes trick-or-treating.

This year on Halloween we will eat homemade caramel apples.

This year on Halloween there will be "ghoul"-ash in the crockpot.

This year on Halloween big C will dress up like a creepy clown and really creep Mom out...(I mean I'm getting creeped out just by seeing that mask lying around the house!)

This year on Halloween we will burn honest-to-goodness REAL candles in our honest -to-goodness jack o' lanterns (come on, people!)

This year on Halloween, the boys will run ahead, not listening to directions, but C will enjoy holding Daddy's hand.

This year on Halloween the kids will beg to go trick-or-treating before it's even dark outside.

This year on Halloween, diabetes or not, a kid can have some candy.

This year on Halloween middle C will dress up as "Backwards Man" (bless this child!)

This year on Halloween the kids will pick out their favorite candies and donate the rest to Daddy's classroom.
This year on Halloween C will trade in some of her stash for a special gift.

This year on Halloween the boys will give Mom any candy she wants from their loot.

This year on Halloween diabetes will remain quiet and well-behaved in the background.

Ahhh...simple costumes!

Happy A1c!

2009-10-28T08:00:00.000-07:00

First, let's just get the good news written down right away...

It's blurry...but there it is, in black and white!

C's A1c went from 8.2 last appointment to 7.1 last week!!! Even her endo did a double take! I told her I had really been almost obsessed about it. Then she remembered all our emails back and forth a couple months prior. We tweaked such minor amounts of basals and carb ratios. But, wow, what a difference!

I don't believe she has ever tested that low since diagnosis. It had been depressing as we watched the number climb or hover at each endo appointment over the years. I know that there are many times, no matter how hard we try, that it just doesn't seem to budge. I had to do a lot of trusting and allowing her number to go lower than my comfort zone. It was hard. Sometimes, it really scared me. And there were times and there will still be times when I let her run a little on the high side because, well, it sits better with my nerves than a low. This is especially true when I leave her in someone else's care.

C and I walked out of that appointment with a happy little A1c! We celebrated by going to the McDonald's right there in Children's Hospital. We called her dad and left a message. He would want to share in the excitement too.

When we got home from that appointment, I wanted to tell someone! Someone that would understand. Someone that could really understand the significance. So, I tweeted to my D friends out there. In a matter of minutes, I had so many responses, so many cheers! These people totally get it. One little number. They understand the blood, sweat and tears (literally) that go into changing it. It amazes me...this online community. People who I've never met face-to-face, hundreds, if not thousands of miles away, are there to offer a rousing "yay!" As I shared this small triumph, I did so with a humble heart. Because Lord knows, next week, I may need an encouraging word to lift me from the downside of diabetes.

So, one small step for us...one giant THANK YOU to the DOC!

Sleep by Number

2009-10-23T08:00:00.000-07:00

Well, C's blood glucose was all over the board during the "Sleep-Over."

The bounce castle...the hypoglycemia culprit.

From 32 after the bouncer...to 378 after birthday cake. And everywhere in between. Maybe the first sleep-over should have been with 1 or 2 friends not an entire house full of little girls. Live, learn.

The 32 was quite unnerving, especially since it was only about a half hour after the party started! There has only been one lower known number on her meter. I remember a 27, but that was when she was in the hospital at the time of diagnosis. Needless to say, I hung out at the party much of the time.

As all you type 1 parents know, it is quite the guessing game, this diabetes. I thought I had set her up pretty well before the party started. She was around 180. I felt good about it. I knew she was running on excitement and would need the extra "umpf." But, like I wrote above, she crashed to 32 within a half hour.

So after helping her come up to 78, I didn't correct for pizza at all. Two hours later...102. Good call? More like, good guess. The 32 really scared me.

Then came a 230. But they weren't finished with all the games, nail-painting and jacquzzi time, so I left it. Movies and popcorn. (I mean, this party had it all!) Lots of guesstimating. Lots of manual bolusing. I wanted C to be carefree. I hope she felt like that. I certainly did not.

So when all those cute little girls were snuggled down into their sleeping bags, I checked her, yet again. 378. Oh well. A delayed pizza reaction? Bad guess on the cake? Popcorn always sends her sky-rocketing. How about all those things put together? We dealt with it. But I didn't want to correct it entirely. So I half-bolused it. I went home (two doors down) and set my alarm for 1:00 am.

I crept in the house about 1:03 and made my way to C. To my surprise, about 1/2 of the girls still had their eyes open, watching a movie! C was sound asleep. Check...68...ug. Wake her up. Juice box. Waited. 66! Patience. 70. I fumbled in the fridge for some milk. Kisses. Back home. Set the alarm.

At 3:00 am, I repeated the scenario. 195. I could live with that...or rather, I could sleep with that. Back home and back to bed. The party mom was dozing on the couch and I whispered to her, "I'm done. I won't be coming in again until morning...well...until they're all awake! She's 195."

The phone woke me about 7 o'clock. "They're all up!"

When I got there, C checked in at 108. Wonderful! Perfect number to have a donut! In a couple hours, she's home again. Check...101. Whew! We did it, I thought. It felt so good to have her home again.

What a sleep-over.

32...48...78...102...230...378...68...66...70...195...108...101.

Sleep-Over Anxiety...

2009-10-16T08:00:00.000-07:00

As I write this, every nerve in my body seems to be standing at attention.

Cupcake carb count = lots!

C is going to her first sleep-over this weekend. She's so excited! I'm so nervous. She's thinking of the pillow fights and cupcakes. I'm thinking of hypoglycemia and the 3 am check. She's thinking of which pajamas to take. I'm thinking of which medicine to take--Tylenol or Advil. I'm feeling a tremendous headache coming on...

Granted, we are fortunate. The party is taking place 2 doors down the street. We like this family, a lot. They are friendly, responsible and generous. The mom has always taken an interest in C and her diabetes issues. So, she is very willing to work with me on this. If I want to stay every minute? She's good with that. Sneaking in their house at 3 am? She's fine with it. Coming over at 6:00 am for coffee in her kitchen? It's all okay.

**BIG BREATH**

This is going to be good, right? It's going to be fun for C. A challenge for me.

I wish I could see what's around this huge corner that we're turning.

8-10 Times a Day

2009-10-14T08:00:00.000-07:00

A 7 year old's routine, 8-10 times a day.

I've read many a blog with statistics about how many injections have been given, how many finger pokes have happened...even the extreme cost of managing diabetes. So, here's our stab at it...just the lancing issue...

Since her diagnosis at age 22 months, we estimate that C has had approximately 21,350 finger pokes, give or take a few hundred. (Wow...seeing that number in print turns my stomach.) You can't tell by the picture, but her littlle fingers are speckled with lancet wounds. We continually tell her to rotate fingers and use the sides, but she is a creature of habit and has her favorite (ug!). When it is most apparent is after bathing or swimming. The holes, literally open up, and look so huge on her little fingers.

Where am I going with this?? Pity? Hardly. Awareness? Yes. We need a cure. This should not be the daily routine of a 2nd grader...or anyone, for that matter. It's tiring. Sometimes all-consuming. And, it hurts. I've done it to my own fingers. C will tell you that it's just a pinch. She doesn't flinch, not even in her sleep. She may have built up a tolerance for it. But, it does hurt.

WDD is coming. (World Diabetes Day) November 14th. The diabetes community is buzzing about awareness campaigns. And so my mind is wandering with thoughts of what we can do to raise it up a notch. Maybe simply sharing what exactly goes into "managing" this disease can help just a tiny bit.

Go to the World Diabetes Day website and learn more about this global campaign.

(Off the subject, sidenote: big news over at sixuntilme.com today...shout out to Kerri...yay!!!)

Apple Pickin'

2009-10-12T08:00:00.000-07:00

A little rundown of our day in Oak Glen...

The kids had no school on Friday, so I took them up to Oak Glen to do some apple picking. We finally have had a few cooler days, so my mind turned to autumn-like activities.

I wanted to go visit Oak Glen's old schoolhouse first. So we drove on up past several apple farms and pulled in the school's drive. There was a school bus there, but all the kids were outside on the new, "improved," safe playground. I think my kids really had fun looking around and imagining school 100 years ago. All grades in the same room. Reading groups around the potbelly stove. Inkwells. Phonograph. And, the school bell.

The angelic student, the sleepy student and the trouble-maker.

I told my kids the story of when I was young, maybe 8 or 9. My girl scout troop actually spent the night in the old schoolhouse! They were intrigued with the thought of that. And, I had a good time looking around and remembering those good times. The docent lady was very nice and took us down to the basement where we most likely used the kitchen and other facilities way back when.

Ye Olde Schoolhouse

Then, it was off to Riley's Farm for some apple picking. However, they were all out. We were too late. Their crops were not very good this year. Most all the farms were done picking. I know that September is the main apple picking time. But it's so hard to want to go up there when it's over 100 degrees! We'll have to remember for next time.

The apple orchard, minus the apples.

So, instead of apples, we picked...raspberries. It was fun (for the first 5 minutes!) It gave us all a deeper appreciation for what it takes to get food onto our table. It took quite a long time to get one little basket. C and I worked hard. The boys couldn't stay with it for long and went frolicking through the apple orchard!

It took a long time to find those little berries!

After our work in the fields, we headed on to other farms in search of caramel apples. You wouldn't think they would be difficult to find in Oak Glen, but they were! After a couple more stops, we found some. Also, we ran into a few other families we know during our day up there! It was a great day. I always think of Oak Glen as the proof that fall actually comes to Southern California!

Warning:

2009-10-09T08:00:00.000-07:00

Is it just me? Or does everybody get a bit unnerved opening pump supplies to find that one piece of paper telling you that the products you are about to handle, actually place subcutaneously into your daughter's skin, contains potentially cancer-causing substances?

I try not to anymore. But everytime I open that box from Medtronic, there it is. Every three months, that single sheet of paper is victorious in taking a few minutes of my mind's thoughts. Potentially cancer-causing. Potentially.

It aggravates me. I mean, what option do I really have? We're dealing with diabetes. I want the best insulin therapy for my daughter. It feels like a double kick-in-the-shins to know that the products that are keeping her healthy could, ultimately, be harmful.

On another front...I'm a cancer survivor. So my antennae are working overtime, all the time, when I hear that word. Or read it. I'm more mindful now. I watch what I feed my body. I am cautious about many things that normally a person would not think about twice. I over do it with the sunscreen. I've made peace with vegetables. I don't want to give cancer even the slightest advantage over me or my family.

But, then, there it is again. Every three months...a reminder. A reminder that it's really out of my control.
___________________________

Do we, as consumers, pump users and parents of pump users demand products that do not contain these harmful chemicals? Do we add this to our ever-growing lists of things to do. I think, maybe, we do.

Wordless Wednesday

2009-10-07T08:00:00.000-07:00

Our JDRF Walk

2009-10-05T08:00:00.000-07:00

Our 2009 Team, "Kids That Care"

What a great day! Good weather. Good food. Great friends. And loving support! On Saturday, October 3, 2009, we participated in the Inland Empire's JDRF Walk to Cure Diabetes. It was held at Guasti Regional Park in Ontario, California.

For the past couple years, we have been a part of a team, Kids That Care, which was formed by Kaitlyn M. You may remember her from our recent interview with Kaitlyn. She and her family warmly welcomed us onto their team.

This year several of C's little friends joined in the effort. It was heart-warming to see their enthusiasm and support for something so close to our hearts. I think C really felt appreciative and excited that they were there to walk with us!

Then, there's the teacher support that was given. We have a great staff at the kids' elementary school. They really go out of their way to get to know the complete kid! We have felt tremendous support over the years. Some have come out to sporting events. A large group offered their support and encouragement for our family at a breast cancer walk after my treatment. And, every year at the JDRF walk, there they are. This year, the entire 2nd grade team showed up, smiling, hugging and ready to do the 5K. How special is that for our little C?!! As a bonus, our favorite kindergarten teacher (all three of our kids were in her class) came out to the walk again, as she has done each year since Kaitlyn had her for kindergarten 8 years ago! They are special people.

It was a great time of raising funds and raising awareness. Friends, family and teachers helped make it so.

The L.A. County UnFair

2009-09-30T08:00:00.000-07:00

Okay, first of all, it was 150 degrees last Wednesday when I had the privelege of going on the all-school field trip to the L.A. County Fair. I accompanied C and her 2nd grade classmates.

I went, prepared and armed for a scorching hot day. Rolling ice chest filled with water bottles. Giant spray bottles to cool down the kids. And of course, C's diabetes bag filled to the brim with extra stuff to make diabetes behave itself.

Since the entire school was attending this field trip, there was a parent/volunteer meeting in the cafeteria just before boarding the buses. We were given the rules:

no younger siblings
don't purchase anything
bring a sack lunch
stay with the group
all students must return to school - no staying at the fairgrounds after the official field trip time
no rides
no games
no tank tops
act appropriately
keep track of students on your list
meet at gazebo at appointed time

I totally understand them. And I totally agree with most of them. But, let me tell you, it's no fun eating a peanut butter and jelly sandwich while staring at the Hot Dog on a Stick stand. And it was indeed torturous in the 1000 degree temperature to pass by the shave ice carts. Unfair.

The kids thought other things were unfair.

"Why can't we buy anything?"

"I want to go on a ride!"

"Can't we just play one game?"

"Oh, come on," they said. "That's not fair!"

So we nicknamed it...the L.A. County UnFair.

No to the balloons.

No to the rides.

But, yes to the petting corral in 111 degrees.

(Don't think I was that much of a party pooper! Actually, we had some fun. We saw African animals, up close and personal. We went through the dinosaur exhibits. We walked through the Smokey Bear area. We saw a magic show. And, I really didn't mind the farm animals area. Who can resist little piglets or pigmy goats?!)

Oh...and diabetes? C stayed between 80 and 140. She needed very little bolusing. And a chocolate milk (without correction) kept her number from crashing in the heat.

WDD is Coming!

2009-09-28T08:00:00.000-07:00

World Diabetes Day is only a few weeks away. November 14th. It is actually the birthday of Frederick Banting, one of the people who discovered insulin! What will you do to mark this day as part of your fight against this disease?

There are a lot of ideas swirling around the internet about it. It's great!! I thought I would list a bunch of things that are in the works out there. Who knows? It may spark some advocacy in your hearts (or mine!)

First off, go to http://www.worlddiabetesday.org/ and subscribe to the email newsletter to stay informed of activities and ideas.
Macy's Shop for a Cause http://tinyurl.com/shop4cure Donate $5 and receive a voucher (good on October 17th) for 20% off all items plus 25% off one. (Hey, do your Christmas shopping early!)
Help make WDD go viral! Go to http://www.wddusa.org/ for a list of great ways to help in the cause.
Sign the World Diabetes Day USA petition and commit to doing just 3 things for this important event. They give you lots of ideas!
Put a WDD banner on your personal/company website/blog. http://www.worlddiabetesday.org/materials/web-banners
Light a blue candle on November 14th.
Educate a friend about warning signs of diabetes.
Simply wear blue in support of World Diabetes Day.
Go to http://www.jdrf.org and start a walk team.
Go to http://www.diabetesdoodle.com/ and sign the petition asking Google to light their homepage doodle in blue for diabetes awareness November 14th.
Tu Diabetes is sponsoring a video contest called "Making Sense of Diabetes"--go to http://tudiabetes.com/notes/Making_Sense_of_Diabetes for all the info. Each week, the focus will be on one of the five senses and how your diabetes relates. Interesting stuff!

So, these are just a few examples of the creativity flying around out there. Some ideas are so simple. Some require some forethought. Or...you may have an idea all your own! Let's help make World Diabetes Awareness Day count.

Whenever I Meet Another D-Mom...

2009-09-25T08:00:00.000-07:00

Would you just look at this picture! I mean, I nearly broke down in tears when I saw this.
__________________________

We were at C's soccer game last Saturday. When we arrived to meet up with the rest of the team, one of C's little teammates came running up to me and said quickly and energetically with a BIG smile, "We brought snacks today. And there's Twinkies, chips and a drink. The total carb count is 55 grams. My brother is diabetic." And just like that, she was gone.

I looked around. Did she just say what I thought she said? Where was her mom? Who is her mom? This was only our 2nd game and I didn't have all the faces matched with names yet. And, because of all the Southern California fires, we really only had one practice for the girls. So...I looked around for the mom.

She actually, came up to me and handed me the bag. "Just thought you may like the carb count on everything beforehand."

I was down on my knees tying C's shoes. "Oh," I said, as I got up. "Thank you, thank you!" I gave her a big hug. I don't know this lady from Adam, but...she hugged back. "That is so great," I said. "Thank you!"

I didn't know she had a diabetic son. Rarely do I step up and ask for any accommodations for C's diabetes. But this lady had heard me at our first team meeting simply explain that C is type 1 and tell all the parents it's perfectly okay to tell me or the coach if she looks "out-of-sorts" on the field...that she may be experiencing a hypoglycemic episode.

Our families sat next to each other during the game. We talked "diabetes" but we also cheered on the girls, and laughed at her husband's jokes. Instant unspoken bond...whenever I meet another D-mom.

"Kids That Care"

2009-09-23T08:00:00.000-07:00

Each year, Kaitlyn M (13) has organized and run a fundraiser benefitting the Inland Empire chapter of the JDRF (Juvenile Diabetes Research Foundation). Coming up on September 26, 2009 Kaitlyn will be taking on the task once again. She will set up the Craft, Cookie and Lemonade Stand at her house. Donations will be raised for her walk team, "Kids That Care." You see, Kaitlyn is your typical teenager. She attends middle school, hangs out with her friends and plays softball. However, she does all these things with the added challenge of type 1 diabetes.

Kaitlyn and friend at last year's walk.

mpg: When were you first diagnosed with type 1 diabetes?

KM: October 14, 1998, I was 2 1/2.

mpg: What do you remember from the early time of your diagnosis?

KM: I was scared and always needed my band-aids.

mpg: Everyone is always curious about the symptoms. What were some of the things happening with you that led your parents to notice something just wasn't quite right?

KM: I was constantly going to the restroom and was always thirsty. I had the flu and we think that triggered it.

mpg: Briefly, what is your daily routine in managing your diabetes?

KM: 7:00am- Wake up, test and bolus for breakfast.

          8:30- Go to school, drop off test kit at nurses office.

          10:45 (2nd Period)- Test and bolus for snack/

           12:50pm (4th Period)- Test and bolus for lunch.

           4:00- Go home, test and bolus for afternoon snack.

            6:30- Test and bolus for dinner.

            Days over! 9:30 (Bedtime)- Test and write down numbers for the day.

mpg: What do you wish people would understand about diabetes?

KM: It is not contagious, we occasionally have sugary foods and most importantly we are normal people, we just have to watch what we eat and test our blood sugar.

mpg: What is your biggest challenge in dealing with this disease?

KM: Not being able to eat all the candy with my friends, I don't have the same freedom as everyone else in general.

mpg: What would you tell a friend who has been newly diagnosed?

KM: Hang in there, it's a pain, and if you need me I'll be there.

mpg: What made you want to start fundraising for the JDRF?

KM: I don't like this disease, whatsoever, and we need a cure and JDRF helps fund research to find the cure we most definitely need.

mpg: Describe what people will find when they come out to your fundraiser.

KM: They will find crafts, cookies, and ice cold lemonade. My friends and family will be there helping and supporting me and I will guarantee they will leave with a smile on their face!

Kaitlyn and some of her team, Kids That Care.

If you are in or around the Southern California area this Saturday - September 26th, come on by! Leave a comment and my pump gear will contact you via email with specific location and times for the Craft, Cookie & Lemonade Stand.

The Inland Empire's JDRF Walk is coming up on Saturday, October 3, 2009. If you're in the area you may want to join the team. Come on out to and help support this great cause. Together we can make a difference! If you'd like to join in the walk or simply make a direct donation to the JDRF, simply go to their website and follow the link to donate. http://www.jdrf.org/. Don't forget to mention "Kids That Care!" Thank you!!

The Incredible Shrinking Carbs

2009-09-21T08:00:00.000-07:00

So the other day, I was in the grocery store. No big news there. But, as I headed down the frozen treat isle, I came upon the ice cream. I checked them all out, going forward and back. What's on sale? Do they still have the Junior Mint Limited Edition? These were the questions on my mind. And then, I just stared. I stood there and stared. I looked left. I looked right. And, although I reprimand my children for doing this, I opened one of the "clear glass" doors and continue my pondering. I picked up a 1/2 gallon container and compared it to another.

While I was deep in thought, a store employee who was stocking the Fritos behind me, asked "Is there something I can help you find?"

I realized the guy was speaking to me, so I turned around, with Rocky Road in one hand and Double Chocolate Swirl in the other. "Oh," I said. "Well, I can't help but notice how these containers have shrunk. They aren't even 1/2 gallons anymore." And then I looked at one of the cartons: 1.75 quarts! "Sheesh!"

"Oh, yeah," the guy said. "That's what they do. Those companies keep the same price and shrink the packaging. Then, just wait a few months. You'll see the prices go up! That's what they do."

"Huh," I said. "Terrible. For a minute there, I thought I was losing it."

Yeah. No more 1/2 gallon ice cream containers. Weird. In the era of SUPER-SIZING, some things are actually shrinking.
_______________________

When it comes to counting carbohydrates for C's diabetes, a half cup of ice cream is a half cup of ice cream. We scoop it. We look at the nutrition guide for the total carbs. And, we bolus accordingly. The smaller ice cream container doesn't affect the way we manage her insulin per serving. However, some items can be greatly affected...

Take, for instance, a slice of bread. Our brand of choice happens to be Homepride Buttertop Wheat. We've used it for years. And with counting carbohydrates seriously for 5 + years now in order to give C the correct doses of insulin, there are many food choices that are simply memorized at this point. Slice of bread...15 grams. Most any brand...15 grams, unless we're using some multigrain or specialty bread, we can usually be certain that it's 15 grams.

Well, after my ice cream epiphany a while back, you'd think I would have taken other foods into consideration. But, I really didn't. Until...

One day, while making lunches, I thought, wow, this bread looks so small! The ice cream scenario flashed through my mind. Hmmmm, I thought. I picked up our staple loaf, looked at the guide, and, lo and behold...13 grams!! It's one thing to have containers shrinking, but now we have the actual carbohydrate count shrinking. Although 2 grams is a smidge, if we doubled it for a sandwich, that would be 4 extra grams we've been covering with insulin that aren't really there.

Needless to say, we've been checking carb counts again on even our memorized food items. I think it's the case of the "incredible shrinking carbs!"

The Flu Shot

2009-09-18T08:00:00.000-07:00

We're getting flu shots today.

The First Flu Bug w/Diabetes

2009-09-16T08:00:00.000-07:00

answer: "At least it's manageable."

______________________________

It was summertime, 2003...the first summer with diabetes for our family. C had received the diagnosis in December. It was now August. We had been coping with this beast for several months now. And except for a few sniffles here and there, we had managed to stay fairly healthy since that time.

Summer activities were in full swing. Both the boys were in VBS (Vacation Bible School) at our church. This left a little time each morning for just C and me.

Day 3 of the week -- I picked up the younger from his group time. We raced around doing some errands. Picked up the dog from the vet. As we left to go home for lunch, middle C announced that he was "going to throw up!" Got the dog in the car, C strapped in, and gave middle C a baggie, just in case.

We made it home. I rushed everybody inside. Middle C proceeded to do exactly what he told us he was going to do. Needless to say, there was no lunch for him...just a wet washcloth and trash can by his bed. After settling him in his room, I turned my attention to C's lunch.

Only two years old at the time, she crawled up into her high chair. I checked her finger. As C munched away on lunch, I drew up the insulin for the carbohydrates she was consuming. Back then we, almost always, gave her the injection after she finished her meal. It was so hard to know if she would actually eat everything in front of her or not...she was a two year old! When she was close to finishing, I gave her the shot. Honestly, the way I remember it...it wasn't 5 minutes later that she hopped down from the chair, began to fuss and threw up all over the kitchen floor.

Did you get that? She just ate lunch. I just gave her an injection of insulin. And she just threw up all over the kitchen floor.

I scooped her up, took her upstairs and began cleaning her up, all the while, she was fussing and crying. I remember catching a glimpse of the two of us in the bathroom mirror. C...with vomit all over her cute little outfit and strung through her hair. And, me...with a look of terror in my eyes. My thoughts raced. She just ate lunch. I gave her insulin. And, she threw up. Those were the phrases swirling through my brain. I had to get a hold of myself and, the situation.

While I put C in her room, middle C needed help. The poor kid would have to fend for himself for a while. I was panicking big time. I ran to get C's meter. I remember checking her blood glucose frantically. It was somewhere in the 70s. This was not good. No food in her tummy. Lots of insulin at work. All I could do was hold her and rock her and wipe up the next round of vomit.

BG check. She was dropping and fast. 62. Juice. Vomit. BG check, 54. Juice. Vomit. Oh, my God! What was happening?? Lord help me!

I cannot clearly explain the desperation I was feeling. I ran to get the phone. I called the emergency hotline for CHLA. Thankfully, I got through quickly. A lovely nurse was on the other end of the line with me in an instant. I'm certain that I was quite incoherent, but I tried my best to tell her what was happening.

Vomit. Oh Lord!

"Okay, dear," the lovely nurse said. "Okay, I want you to put me on speaker and check C's blood glucose again."

"Okay," I said. I know I was blubbering at this point.

I hit the speaker button and dropped the phone. BG, 41. My hands were shaking. "41," I cried.

"Okay," the lovely nurse said. In such a calm, sweet manner she asked me, "do you have a glucagon kit handy?"

"Uh, uh...yes. Wait, it's downstairs," I muttered.

"Now, leave C and go down and get it and come right back to me, okay?"

"Okay."

I got back to C's room, dropped to the floor. "Okay," I said. "Got it."

By this time, C was quiet, laying on the floor, next to me. I checked her once again. 37. I felt like the world was caving in on us.

The nurse gave me specific, detail by detail, directions. "I'm going to walk you through giving C small doses of the glucagon, okay?"

"Okay."

"I want you to go get a few syringes and come right back," she said.

"I've got some right here in her bag," my voice was so shaky.

The lovely nurse continued to direct me in mixing the solution, drawing it up and giving tiny doses of it to C. After every 5 minutes or so, she would tell me to check C's glucose. I remember repeating the cycle over the next couple hours. Her number would rise to 54. Then it would drop to 47. 60. And then 58. It was like a cruel game.

After an eternity, her numbers came up above 70. When the lovely nurse felt C was in a good range. She told me to let her sleep. Then, I should check on her every 15 minutes and call the lovely nurse back. I did.

Of course, after C hadn't vomitted for several hours, we went back to using juice to correct the lows.

I know my memory is foggy at best, but I can remember camping out on the floor in her room for about 2 days, ready to do whatever was necessary for my baby.
_______________________________

question: What is the number one thing a mom of a newly diagnosed 2 year old doesn't want to hear?

Invisible Illness Awareness Week - September 14 - 20th

2009-09-14T08:00:00.000-07:00

So, today is the beginning of Invisible Illness Awareness Week. Who knew? I guess I wouldn't have either if I hadn't read Kerri's post from Six Until Me this morning. I had another post all polished up and ready to go. But then I began pondering...invisible illnesses...
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I've always felt that diabetes is an invisible illness. If C wasn't checking her blood glucose or manipulating her pump, the average passer-by would never know of her disease, to just glance at her. She's the epitome of a 7 year old girl. In my opinion, she's cute! Flowing blond hair, blue eyes, a hint of freckles...her body - fit and proportioned. She looks healthy, happy and energetic. In fact, that's the response I receive sometimes when people find out about her type 1 diabetes..."But she looks so healthy!"
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Then there's Middle C. He is the typical 10 year old boy. He plays baseball, nearly year-round. And if he's not on the field he's riding his bike with friends, jumping everything in sight. He's lean and looks healthy. However, he had a severe episode with his asthma this past June. It kind of caught us off guard, really. He hadn't needed an inhaler or nebulizer for years. But when we had heavy, moist weather throughout May and June a while back, coupled with a new little feathered friend in the house, it made for miserable breathing conditions for him. It was scary. And it shook us up a bit, reminding us to be prepared. But to look at him now..."He looks so healthy!"
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Okay, me next. I am four years out from my breast cancer diagnosis. My hair's back in full force. I don't look gaunt and "chemo-ed" out anymore. I had a great plastic surgeon and others to help me look pretty-darn-near the same as I did before cancer (fully clothed of course). And, except for about 25 extra pounds (ahem), you'd probably think..."She looks so healthy!"

I bet if you thought about it, you or someone close to you also lives with an invisible illness.

Day in and day out, moment by moment even, C's diabetes must be monitored and balanced for her to live. Middle C's asthma? Well, thankfully it's not an everyday ordeal. But it is something about which to be mindful. To hear your little kid tell you that he can't breathe well, puts an extra beat in your heart rate. And, my cancer? At the time being, it's taken care of and I do feel healthy. But I feel different. I will forever experience the side effects of the treatments. And I live daily with the possibility of recurrence.

So...what is the point of Invisible Illness Awareness Week? I believe it's to help all of us realize that just because someone "looks" healthy, doesn't mean they don't struggle with something. Everybody's got their stuff. And, as a friend, sometimes the best and most powerful thing you can do for someone is simply be there. Show an interest, a sincere gesture to learn and understand. Because chances are, if you haven't been touched by illness already, you or someone you love will be. And, it's in those times when we can all use a good friend who understands.

Remembering...

2009-09-11T08:00:00.001-07:00

September 11, 2001

THE 504

2009-09-11T07:59:00.000-07:00

The last post was all about preparing for our 504 plan...tweeking it and preparing for it mentally.

Well, we finally met yesterday after school...the principal, teacher, me, nurse, health aide, and of course, C. We went over the plan quite quickly since there really weren't too many changes except for recess and lunch times. We also included that C would be able to work her pump and punch in carb numbers with the supervision of the health aide during times when the nurse may not be on campus. I was fine with all of it. But I was on edge throughout the whole meeting.

When the principal asked me if there were any other issues I needed to address, I said "yes" before she could even finish the question.

I told her, "I brought several old, expired glucagon kits with me. And I really want to personally walk the entire 2nd grade team through the process of why and how you would use it." (At this time, I told C to go out to the front office and start on her homework.)

"Oh," she said. "There's such a remote possibil..." I didn't even allow her to finish the sentence. Rude, I know. But for the last two years I have been carrying around this weight...this heavy, awkward thought "I don't know if anyone here, caring for C, really knows how to administer glucagon or not."

Now, don't get me wrong. They say they know. And common sense tells me that the nurse has the knowledge. And the sweet health aide says she's practiced with it before. But what about the teachers? And what if one of them were absent? Or two of them? What if there were a true emergency...a lockdown...for hours? What if C simply didn't eat the carbs at lunch that were inserted into the pump? I could go on and on. Hypotheticals all day long. I'm good at it!

Well before you could say "hypoglycemia," the two other 2nd grade teachers were in the office too. I pulled out some expired kits and an orange. And, as the talk about syringes and needles began, I started feeling very overwhelmed. There were some giggles of discomfort. The nurse caught my eyes, which were now beginning to fill with tears. I don't know what came over me. She quieted everyone down and made the point that this was serious stuff. "This is your child we're talking about. I understand how you must feel about putting this trust in us for her safety." The room was silent.

"Yes," I said. "It's very hard...unexplainable, really." I told all 6 people in the room now, that I need to show them how to use this and watch them open the kit, hold the syringe and practice giving a shot to an orange. I need to do this because it's the only thing I can do to help myself feel better about leaving C at school all day. How many times have I heard people say "Oh, I don't think I could ever give someone a shot!" And, I told them, right then and there, "If someone is taking responsibility for my daughter, whoever they are, they'd better be willing and able to do this." And, of course they all agreed. They are actually a bunch of wonderful people.

And, so, briefly, I described the situation in which glucagon would be needed. A remote possibility? I suppose. But I remember it like yesterday, the time that C did need it. She was only 2 1/2. It leaves a lump in my throat to think about it, still.

As we filed out of the principal's office, the health aide gave me a hug. And in that hug, I felt as if a fifty-pound vest was taken from me. My head felt a little clearer. I hadn't noticed, until that moment, how consumed I had been with these thoughts.

Diabetes. Constant management. Constant stress. Maybe just a tiny bit less now.